影响多发性硬化症患者生活质量的促进和抑制因素:一项定性研究

A. Homayuni
{"title":"影响多发性硬化症患者生活质量的促进和抑制因素:一项定性研究","authors":"A. Homayuni","doi":"10.18502/tbj.v21i6.12294","DOIUrl":null,"url":null,"abstract":"Introduction: Multiple sclerosis (MS) is a chronic progressive disease related to the central nervous system, which affects the patients' quality of life. Several factors play the roles of facilitators and inhibitors concerning the life quality of these patients. This study aims to explain the facilitating and inhibiting factors with regard to the life quality of MS patients. \n  \nMethods: The present study was conducted through a conventional content analysis approach. Through purposive sampling and semi-structured interviews, 18 MS patients referring to the Isfahan MS Association were selected. Data collection continued until data saturation was reached. For data management, MAXQDA-10 software was used. \n Results: Through content analysis of the interviews, 4 main categories and 15 sub-categories were identified. The main categories included personal facilitators (leisure time and coping strategies), interpersonal facilitators (exercise therapy, social support and social organizations), interpersonal inhibitors (physical problems, psychological disorders, uncertain future, functional limitations, losing job and poverty) ,and environmental inhibitors (disease and treatment process, caregivers' fatigue, insufficient information about MS, family tensions, and fun and entertainment). \nConclusion: According to the results of the current research, by taking measures such as providing educational and psychological services for patients and their caregivers, appropriate insurance coverage, easy access to drugs, especially foreign ones with reasonable tariffs, social and financial support, raising the society's awareness regarding this disease and developing an appropriate urban texture can help to improve the quality of life in MS patients.","PeriodicalId":166328,"journal":{"name":"The Journal of Tolooebehdasht","volume":"30 1","pages":"0"},"PeriodicalIF":0.0000,"publicationDate":"2023-03-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Facilitating and Inhibiting Factors regarding Quality of Life in Patients with Multiple Sclerosis: A Qualitative Study\",\"authors\":\"A. Homayuni\",\"doi\":\"10.18502/tbj.v21i6.12294\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"Introduction: Multiple sclerosis (MS) is a chronic progressive disease related to the central nervous system, which affects the patients' quality of life. Several factors play the roles of facilitators and inhibitors concerning the life quality of these patients. This study aims to explain the facilitating and inhibiting factors with regard to the life quality of MS patients. \\n  \\nMethods: The present study was conducted through a conventional content analysis approach. Through purposive sampling and semi-structured interviews, 18 MS patients referring to the Isfahan MS Association were selected. Data collection continued until data saturation was reached. For data management, MAXQDA-10 software was used. \\n Results: Through content analysis of the interviews, 4 main categories and 15 sub-categories were identified. The main categories included personal facilitators (leisure time and coping strategies), interpersonal facilitators (exercise therapy, social support and social organizations), interpersonal inhibitors (physical problems, psychological disorders, uncertain future, functional limitations, losing job and poverty) ,and environmental inhibitors (disease and treatment process, caregivers' fatigue, insufficient information about MS, family tensions, and fun and entertainment). \\nConclusion: According to the results of the current research, by taking measures such as providing educational and psychological services for patients and their caregivers, appropriate insurance coverage, easy access to drugs, especially foreign ones with reasonable tariffs, social and financial support, raising the society's awareness regarding this disease and developing an appropriate urban texture can help to improve the quality of life in MS patients.\",\"PeriodicalId\":166328,\"journal\":{\"name\":\"The Journal of Tolooebehdasht\",\"volume\":\"30 1\",\"pages\":\"0\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2023-03-15\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"The Journal of Tolooebehdasht\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.18502/tbj.v21i6.12294\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"The Journal of Tolooebehdasht","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.18502/tbj.v21i6.12294","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 0

摘要

简介:多发性硬化症(MS)是一种与中枢神经系统相关的慢性进行性疾病,影响患者的生活质量。几个因素在这些患者的生活质量中起促进和抑制作用。本研究旨在解释影响MS患者生活质量的促进因素和抑制因素。方法:本研究采用常规的含量分析法。通过有目的抽样和半结构化访谈,选取了18例参考伊斯法罕MS协会的MS患者。继续收集数据,直到达到数据饱和。数据管理采用MAXQDA-10软件。结果:通过访谈内容分析,确定了4个主要类别和15个小类别。主要类别包括个人促进因素(闲暇时间和应对策略)、人际促进因素(运动治疗、社会支持和社会组织)、人际抑制因素(身体问题、心理障碍、不确定未来、功能限制、失业和贫困)和环境抑制因素(疾病和治疗过程、照顾者疲劳、MS信息不足、家庭紧张关系、娱乐和娱乐)。结论:根据目前的研究结果,通过为患者及其护理人员提供教育和心理服务,适当的保险覆盖范围,易于获得药物,特别是国外药物的合理关税,社会和财政支持等措施,提高社会对该疾病的认识,形成适当的城市肌理,有助于改善MS患者的生活质量。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Facilitating and Inhibiting Factors regarding Quality of Life in Patients with Multiple Sclerosis: A Qualitative Study
Introduction: Multiple sclerosis (MS) is a chronic progressive disease related to the central nervous system, which affects the patients' quality of life. Several factors play the roles of facilitators and inhibitors concerning the life quality of these patients. This study aims to explain the facilitating and inhibiting factors with regard to the life quality of MS patients.   Methods: The present study was conducted through a conventional content analysis approach. Through purposive sampling and semi-structured interviews, 18 MS patients referring to the Isfahan MS Association were selected. Data collection continued until data saturation was reached. For data management, MAXQDA-10 software was used.  Results: Through content analysis of the interviews, 4 main categories and 15 sub-categories were identified. The main categories included personal facilitators (leisure time and coping strategies), interpersonal facilitators (exercise therapy, social support and social organizations), interpersonal inhibitors (physical problems, psychological disorders, uncertain future, functional limitations, losing job and poverty) ,and environmental inhibitors (disease and treatment process, caregivers' fatigue, insufficient information about MS, family tensions, and fun and entertainment). Conclusion: According to the results of the current research, by taking measures such as providing educational and psychological services for patients and their caregivers, appropriate insurance coverage, easy access to drugs, especially foreign ones with reasonable tariffs, social and financial support, raising the society's awareness regarding this disease and developing an appropriate urban texture can help to improve the quality of life in MS patients.
求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
自引率
0.00%
发文量
0
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信