残疾儿童及其家庭服务:对家庭生活质量的影响

Tanja Ignjatović
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引用次数: 2

摘要

在塞尔维亚,有残疾儿童的家庭面临着许多困难,主要是由于社会和经济危机的长期影响。除了缺乏充分和多样化的社区服务外,他们还经常遭受社会孤立和贫困。在过去几十年中,通过为残疾儿童提供社区服务,努力改善对父母的支持。本章基于研究的结果,该研究探讨了这些服务对家庭生活质量的影响。虽然调查结果证实,这些服务总体上改善了他们的生活质量,特别是对那些以前认为生活质量最低的人来说,但还有一些关于“副作用”的额外观察结果,应该成为开发灵活的个性化服务的有用指导方针,以支持家庭的需要并最适合他们。该研究证实了以社区为基础的服务对家庭生活质量的好处,探讨了一些具体方面和变化的范围,以及儿童残疾程度和以前对生活质量的看法对变化程度的影响。不幸的是,仍然有许多生活在贫穷社区的被社会排斥的家庭没有机会使用这些服务,也没有机会体验到生活质量的改善。社会工作者在提供可持续服务方面仍然存在困难,这是未来需要克服的问题。同时,这项研究的结果可能有助于规划进一步发展和评估为残疾儿童及其父母提供的社区服务的步骤,这些儿童及其父母应该接受灵活的、个性化的、最适合他们具体需求的服务。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Services for Children with Disabilities and Their Families: The Impact on the Family’s Life Quality
Families that have children with disabilities are faced with numerous difficulties in Serbia mostly due to the prolonged effect of social and economic crises. Besides insufficient adequate and diverse community-based services, they often experience social isolation and poverty, too. During the last decades, there were efforts to improve support for parents by introducing community-based services for their children with disabilities. This chapter is based on the findings of the study that explored the effect of those services on the families’ quality of life. Although the findings confirmed that the services generally improved their life quality, particularly for those who perceived the lowest quality of life before, there are some additional observations about “side effects” that should be useful guidelines for developing flexible individually tailored service that support families’ needs and suit them best. The study confirmed benefits of community-based services to the family life quality, exploring some specific aspects and range of change, as well as the influ-ence of level of child disability and previous perception of life quality to the extent of change. Unfortunately, there are still a large number of socially excluded families who live in poor communities that had no chance to use the services and experience an improvement in their quality of life. Social workers still have difficulties in pro-viding sustainable services, which need to be overcome in the future. Meanwhile, the results of this study might be useful for planning further steps in developing and evaluating community services for children with disabilities and their parents who should receive flexible and individually tailored service that suits their specific needs best.
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