欧洲镰状细胞病儿童的管理:现状和未来展望

R. Colombatti, L. Sainati
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引用次数: 6

摘要

镰状细胞病(SCD)是世界范围内最常见的血红蛋白病,其发病率在过去几十年中在欧洲稳步上升。SCD是一种复杂的多系统疾病,以慢性溶血性贫血、血管闭塞危象和血管病变为特征。临床表现可能非常不同,从轻度溶血到危及生命的急性临床并发症和慢性残疾。本综述将探讨整个欧洲为SCD儿童提供的服务,报告现有的最低护理标准和未来前景。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Management of Children With Sickle Cell Disease in Europe: Current Situation and Future Perspectives
Sickle cell disease (SCD) is the most common haemoglobinopathy worldwide and its frequency has steadily increased in Europe in the past decades. SCD is a complex multisystem disorder characterised by chronic haemolytic anaemia, vaso-occlusive crisis, and vasculopathy. Clinical manifestations can be very different, ranging from mild haemolysis to life-threatening acute clinical complications and chronic disabilities. This review will explore service delivery across Europe to children with SCD, reporting on the available minimum standards of care and future perspectives.
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