患有自闭症谱系障碍的成人和老年人:以人为本护理的意义

C. Kartoz, M. Wells, Sara Muñoz
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引用次数: 0

摘要

在美国,每44名儿童中就有1名患有自闭症谱系障碍(ASD)。随着ASD患儿的年龄和患病率持续上升,照顾成年人和老年人的护士可以看到ASD患者的比例稳步上升。受这种复杂和异质性神经疾病影响的个人和家庭面临着广泛的社会和行为障碍以及大量的医疗和心理合并症,使护理变得复杂和多方面。患有自闭症谱系障碍的人是弱势群体,他们的预期寿命明显缩短,只有近36岁。本文综述了ASD的定义、特征等基本信息,并讨论了ASD与衰老的相关研究。在整个讨论过程中,我们创建了一个嵌入式案例研究,提供了一个基于功能、合并症、以家庭为中心的护理以及通过描述当下经验获得信息的证据的范例。最后,我们讨论了在实践、教育、研究和护理管理方面对ASD患者以人为本的护理的影响。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Adults and Seniors with Autism Spectrum Disorder: Implications for Person Centered Care
Autism spectrum disorder (ASD) occurs in approximately 1 in 44 children in the United States. As the pediatric population of individuals with an ASD age, and prevalence of ASD continues to trend upward, nurses who care for adults and older adults can expect to see a steadily increasing percentage of patients affected by an ASD. Individuals and families affected by this complicated and heterogeneous neurological disorder grapple with a wide range of social and behavioral impairments as well as substantial medical and psychological comorbidities, making nursing care complex and multi-faceted. Individuals with an ASD comprise a vulnerable population with a markedly reduced life expectancy of nearly 36 years. This article reviews foundational information about the essentials of ASD, such as the definition and characteristics and discusses research about ASD and aging. We have created an embedded case study throughout the discussion that offers an exemplar based on evidence related to functionality, comorbidities, family centered care, and becoming informed through descriptions of the moment experience. Finally, we discuss implications for person-centered care for those with ASD that consider practice, education, research, and nursing administration.
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