社会支持和照顾者负担在癌症儿童父母中的作用

B. Roozbeh, M. Naemi, Maryam Soltani Gerdefaramarzi, Z. Pourmovahed
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摘要

背景:癌症是本世纪最常见的疾病,患病儿童的数量正在增加。它会给家庭照顾者带来很多问题。本研究评估了癌症儿童父母的社会支持与照顾负担之间的关系。方法:采用方便抽样的方法,对2020年3月至8月(2019冠状病毒病疫情)在伊朗亚兹德沙hid Sadoughi医院肿瘤门诊和肿瘤病房就诊的230名家长(115名母亲和115名父亲)进行横断面描述性研究。研究人员要求患者的父母回答调查问卷。采用人口统计学问卷、护理负担量表(CBS)和社会支持量表收集数据,采用SPSS21进行Pearson相关系数、卡方和方差分析(ANOVA)分析(P=0.05)。结果:患儿家长照料负担的平均值为52.19 2.48,社会支持的平均值高于(78.78±13.21)。社会支持与护理负担的一般压力域(P=0.90)、失望域(P=0.52)、情绪投入域(P=0.53)、环境域(P=0.95)、孤立域(P=0.40)无显著相关。结论:癌症患儿父母的社会支持与照顾负担无相关性。其他因素也可能涉及到父母的照顾负担。未来需要更多的样本进行更多的研究。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The Role of Social Support and Caregiver Burdens among Parents of Children with Cancer
Background: Cancer is the most common disease in the present century and the number of affected children is increasing. It can cause many problems for family caregivers. This study assessed the correlation between social support and care-giving burden among parents of children with cancer. Methods: This cross-sectional descriptive study was conducted by convenience sampling method on 230 parents (115 mothers and 115 fathers) referring to Oncology Clinic and Oncology Ward  in Yazd Shahid Sadoughi Hospital (Iran) from March to August 2020 (Covid-19 Pandemics). Researchers asked the patients' parents to answer the questionnaires. The data were gathered by the demographic questionnaire, Care Burden Scale (CBS), and Social Support Scale and analyzed with SPSS21 using Pearson correlation coefficient, Chi-square, and Analysis of Variance (ANOVA) (P=0.05). Results: The mean of the care burden of parents was 52.19 2.48 and the social support of them was higher than that (78.78± 13.21). There was no significant correlation between social support and domains of general strain (P=0.90), disappointment (P=0.52), emotional involvement (P=0.53), environment (P=0.95), and isolation (P=0.40) of the care burden. Conclusions: There was no correlation between social support and care burden in the parents of children with cancer.  Other factors may be involved in care burden of the parents. More research  is needed with more samples in the future.
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