“母性叙事”:患有严重精神疾病的母亲养育孩子的生活经历

D. Banerjee, R. Arasappa, P. Chandra, G. Desai
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摘要

背景:母性是一种独特的现象,在患有严重精神疾病(SMI)的女性中并不罕见。然而,很少有人注意到这些患有重度精神障碍的母亲是如何应对的。本研究采用社会建构主义范式进行质性探索,以了解重度精神障碍母亲在养育子女期间的生活经验。方法:本研究采用社会建构主义范式的定性设计,获取30名儿童年龄<5岁的重度精神障碍母亲的资料。采用抄本进行一对一深度半结构化访谈,运用Charmaz的扎根理论对抄本进行归纳主题分析。三角测量和受访者验证被用来确保严谨性。结果:紧急类别(主题)是关于生育的想法/感受(将孩子视为珍贵和期待已久的财产,母亲身份具有“治疗作用”,对儿童心理健康的担忧)、精神疾病的影响(情感联系问题、与儿童分离、为履行母亲角色而改善的医疗保健)、未满足的需求(支持团体、同情、责任分担、家庭治疗)以及照顾者的反应(责备、歧视、精神保健机构化、与监护有关的威胁)。母亲身份是她们身份的核心部分,平衡“照顾孩子和精神疾病”的负担是最重要的类别。结论:重度精神障碍母亲从生孩子到抚养孩子的复杂情感旅程充满了许多挑战。为她们制定敏感和有针对性的精神保健干预措施和政策需要纳入她们自己的声音,这将改善母子关系以及服务的利用。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
“Narratives of Mothering”: Lived Experiences of Child-Rearing in Mothers with Severe Mental Illness
Background: Motherhood is a unique phenomenon and not uncommon in women with severe mental illness (SMI). However, little attention has been paid to the voices of these mothers with SMI as to how they navigate it. A qualitative exploration with a social constructivist paradigm was used to understand lived experiences of mothers with SMI during the child-rearing period. Methods: The study used a qualitative design with social constructivist paradigm to obtain data from 30 mothers with SMI who had children <5 years of age. One-to-one in-depth semi-structured interviews were conducted with transcription, and inductive thematic analysis was used to explore transcripts using Charmaz's grounded theory. Triangulation and respondent validation were used to ensure rigor. Results: Emergent categories (themes) were thoughts/feelings about childbearing (considering children as prized and long-awaited possession, motherhood as “therapeutic,” concerns about child's mental health), the impact of mental illness (problems in emotional bonding, separation from children, improved healthcare to serve the maternal role), unmet needs (support groups, empathy, responsibility-sharing, home-based treatment), and caregivers' reactions (blame, discrimination, institutionalization for mental healthcare, custody-related threats). Motherhood as a central part of their identity and burden of balancing “childcare and mental illness” was the overarching categories. Conclusion: The complex emotional journey of a mother with SMI from child-bearing to child-rearing is fraught with many challenges. Developing sensitive and tailored mental health care interventions and policies for them needs to include their own voices, which will improve maternal-child bonding as well as service utilization.
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