比较2型糖尿病自我管理应用程序与低收入少数患者的需求:是否存在隐性功能偏差?

Wayne W. Zachary, Hita Gupta
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引用次数: 1

摘要

背景:糖尿病是一种影响美国3000万人的慢性疾病。它是导致死亡的主要原因,也是严重COVID-19的主要风险因素。超过90%的病例为2型糖尿病(T2DM),发病为成人,其危险因素为行为(如吸烟)或环境(如营养不良、体力活动减少)。自我管理对于T2DM的长期治疗至关重要。它包括坚持药物治疗方案、持续的营养和身体活动管理、血糖监测和行为改变(如戒烟)。已经开发了许多移动计算健康(mHealth)应用程序来支持TM自我管理。问题:美国2型糖尿病在非西班牙裔白人和受过良好教育的人群中的发病率已经趋于平稳,但在低收入人群中,尤其是非洲裔美国人、拉丁裔美国人和美洲土著少数民族中,诊断继续不成比例地增加。这造成了与社会和经济因素有关的越来越大的健康差距,这些因素包括获得保健、健康食品、职业机会和体育活动选择的不同机会。(称为健康的社会决定因素或SDOH[1]。最近的公共卫生研究[2,3]已经开始确定低收入非洲裔美国人面临的独特的SDOH挑战。这张海报考察了现有的T2DM移动健康应用程序在多大程度上能够满足这项新兴研究中暴露的自我管理需求,而不是更广泛地研究与更富裕和主要是白人的T2DM患者相关的需求和问题。方法:从最近的综述文章中选择了17个积极评价的T2DM应用程序。分别编译了两组功能特性。首先,从T2DM文献中,我们编制了一套23个类别和子类别的一般特征,这些特征被认为是支持T2DM自我管理过程的必要条件。其次,通过对低收入非裔美国人T2DM患者SDOH挑战的研究,开发了一套包含11个功能特征和子特征的功能特征。然后使用两套标准分两阶段对T2DM应用程序进行比较。因为第二组中的许多标准都涉及到社交支持,所以只有那些具有某种形式的社交功能的应用才会被纳入第二阶段的比较。结果。两个比较的结果呈现为两个矩阵,将每个应用程序与每个标准和子标准进行比较。第一阶段的应用程序中没有一个包含文献中建议的所有一般功能,尽管有几个接近。在第二阶段,大多数应用很少或根本没有针对自我管理能力的社会支持。结论。现有T2DM应用的社交功能似乎基于一般社交网络媒体(如Facebook、Twitter、Instagram)中使用的不受约束的社交网络模型。然而,低收入社区所表达的需求侧重于能够在自我管理活动中提供实际帮助的一级地理空间-地方网络。此外,现有的应用依赖于付费版本和应用内销售的盈利模式,但低收入用户无法使用这些功能。这样的设计决策暗示了对更富裕的用户群体的隐性设计偏见,从社会学角度来看,这些用户群体也更倾向于白人。参与式设计被推荐为一种可以帮助避免这种隐性设计偏差的方法。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Comparing Type 2 Diabetes Self-Management Apps Against the Needs of Low-Income Minority Patients: Is There An Implicit Functionality Bias?
Background: Diabetes Mellitus is a chronic disease affecting 30 million in the US. It is a leading cause of death and a major risk factor for severe COVID-19. More than 90% of cases are Type 2 (T2DM), which has adult onset and has risk factors that are behavioral (e.g., smoking) or environmental (e.g., poor nutrition, decreased physical activity). Self-management is critical to long-term treatment of T2DM. It includes adherence to medication regimens, constant nutritional and physical activity management, blood glucose monitoring, and behavioral changes (e.g., smoking cessation). Many mobile computing health (mHealth) apps have been developed to support TM self-management. Problem: US T2DM rates among non-Hispanic whites and the well-educated have leveled off, but diagnoses continue to increase disproportionately among low-income populations, particularly African-American, Latino, and Native American minorities. This has created a growing health disparity associated with social and economic factors that include differential access to healthcare, healthy food, occupational opportunities and physical activity options. (termed Social Determinants of Health or SDOH [1]. Recent public health research [2,3] has begun to identify unique SDOH challenges faced by one such population, low-income African Americans. This poster examines the degree to which the existing T2DM mHealth apps are able to address the self-management needs exposed in this emerging research, versus the more widely studied needs and issues associated with more affluent and largely white population of persons with T2DM. Methods: Seventeen positively assessed T2DM apps were selected from recent review articles. Separately, two sets of functional features were compiled. First, from the T2DM literature, a set of 23 categories and sub-categories was compiled of general features that were identified as desirable to support the T2DM self-management process. Second, a set of eleven functional features and sub-features was developed from the research on the SDOH challenges of low income African American persons with T2DM. The T2DM apps were then compared in a two-stage process using the two sets of criteria. Because many of the criteria in the second set involved social support, only those apps that have some form of social functionality were included in the second stage comparison. Results. The results of the two comparisons are presented as two matrices comparing each app with each criterion and sub-criterion. None of the apps in stage one contained all the general functions suggested in the literature, though several come close. In stage two, most apps had few or none of the focused forms of social support for self-management capabilities of interest. Conclusions. Social capabilities of existing T2DM apps seemed based on the unconstrained social network models used in general social network media (e.g., Facebook, Twitter, Instagram). However, the needs expressed from the low-income communities focused on first order geospatially-local networks that could provide pragmatic help in self-management activities. Additionally, existing apps relied on Premium versions and in-app sales for revenue models, but such features are not accessible to low-income users. Such design decisions suggest an implicit design bias toward more affluent user populations, which also sociologically tend to be more White. Participatory design is recommended as a method that could help avoid such implicit design biases.
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