在欧洲和美国,病人和公众参与的不断发展的实践

D. Haerry, N. Brooke, M. Dutarte, J. Geissler
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摘要

患者和公众参与(PPI)在美国和欧洲的学术研究中一直在发展,自20世纪80年代初以来,这是由积极分子为应对艾滋病毒流行而启动的。本文简要介绍了美国和欧洲学术人类研究中PPI的发展,重点介绍了几个美国和欧洲组织的PPI倡议,讨论了PPI如何在卫生技术评估机构中获得动力,并就如何将更多PPI纳入学术人类研究为各种利益相关者提供了建议。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The evolving practice of patient and public involvement in Europe and the United States
Patient and public involvement (PPI) in academic human research has been evolving in the United States and Europe since the early 1980s, when it was jump-started by activists responding to the HIV pandemic. This article provides a brief look at the development of PPI in academic human research in the US and Europe, highlights the PPI initiatives of several US and European organisations, discusses how PPI is gaining momentum in health technology assessment bodies, and provides recommendations for various stakeholders on how to incorporate more PPI into academic human research.
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