造口患儿:父母帮助父母。

A Davies
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引用次数: 0

摘要

每年都有成千上万的儿童进行造口手术,以治疗各种获得性疾病和先天性异常。儿童造口术的父母面临着成功生活和管理孩子造口术的挑战。这些家庭需要实用的信息和支持,无论是来自专业团体,还是来自分担了造口手术孩子责任的父母。在全国各地建立了一个父母支助网络,以解决这些家庭的一些需要。本文提供了有关这些网络状态的最新信息:它们必须提供什么以及如何访问它们。这些群体继续进化,在这个独特的群体中显示出一种趋势。做了造口手术的孩子的父母不再需要在他们的经历中感到孤独。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Children with ostomies: parents helping parents.

Thousands of ostomies are performed on children every year to treat a variety of acquired conditions and congenital anomalies. The parents of children with ostomies are faced with the challenge of successfully living with and managing their child's ostomy. These families need practical information and support, both from the professional community and from parents who have shared the responsibility of a child with an ostomy. A parental support network has been developed throughout the country to address some of the needs of these families. This article provides current information about the status of these networks: what they have to offer and how they can be accessed. These groups, which continue to evolve, demonstrate a trend within this unique population. The parents of a child with an ostomy no longer need to feel alone in their experience.

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