在循证医学中重用休眠分布式遗留数据

J. Sliwa, Emmanuel Benoist
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引用次数: 0

摘要

在目前循证医学的趋势中,我们不应忘记以前收集的数据,无论是在手写记录中还是在遗留系统中。在本文中,我们提出了一个过程,以整合我们的工业合作伙伴的治疗机器收集的数据,用于治疗神经和骨科疾病。这些设备被部署在世界各地的许多物理治疗诊所。在治疗过程中,他们收集并存储各种物理参数的精确测量值。由于它们已使用多年,因此拥有大量有价值的数据集。该项目的一个目标是开发一种机制,将这些分散的数据传输到中央服务器,由医疗统计专家团队对其进行分析。另一个目标是开发一种软件,允许这些专家灵活地定义各种统计数据,而不需要拥有IT技能。除了允许收集和分析治疗过程数据的系统之外,还开发了一个应用程序来实施标准化的生活质量问卷(EuroQol-5D),该问卷允许将使用该机器的治疗结果与其他治疗方法进行比较。作为合作项目的激励,患者会收到一份关于他/她的治疗进展的个人报告,可能以患有相同疾病的其他患者的进展为基准。该报告还可以通过该项目开发的软件灵活配置。通过这种方式,以前在全球孤立系统中休眠的宝贵数据可以重复使用,以验证和改进治疗,使患者受益。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Reusing Dormant Distributed Legacy Data for Evidence Based Medicine
In the current trend towards the evidence based medicine we should not forget previously collected data, neither in hand-written records nor in legacy systems. In this paper we present a process to integrate the data gathered by therapeutic machines of our industrial partner used for treatment of neurological and orthopedic disorders. These devices are deployed in numerous physical therapy clinics worldwide. During a therapy session they collect and store precise measurements of various physical parameters. As they have been used for many years, they hold a large and valuable set of data. One goal of the project was to develop a mechanism for transferring those dispersed data to a central server where they can be analyzed by a team of specialists in medical statistics. Another goal was to develop a software that permits to define flexibly various statistics by those specialists, without a necessity of having IT skills. In addition to the system permitting to collect and analyze the therapy session data, an application has been developed to implement a standardized quality of life questionnaire (EuroQol-5D) that allows to compare the results of the therapy using this machine with other therapy methods. As an incentive to cooperate in the program, the patient receives a personal report about his/her therapy progress, possibly benchmarked against the progress of other patients suffering from the same disease. This report also can be flexibly configured by a software developed in this project. In this way, valuable data, previously dormant on isolated systems worldwide, can be reused to validate and improve the therapy for the benefit of the patients.
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