自闭症谱系儿童的养育压力和角色

I. Gusti, A. Shinta, D. Prameswari, Adriana Soekandar Ginanjar, Gloryka Ednadita, dan Santy, Yanuar Pranawati
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引用次数: 1

摘要

本研究的目的是了解有自闭症儿童的父亲的育儿压力和应对策略。本研究采用现象学定性方法。数据是通过半结构化访谈和观察收集的,他们的孩子从青少年到青年都患有阿斯伯格综合症。参与者采用滚雪球抽样法获得。结果表明,父亲们经历了来自各种挑战的压力。压力的主要来源是经济上的,因为他们负责为孩子的需求提供资金。为了应对压力,父亲们采用了各种应对策略。他们与妻子合作,接受孩子的状况并计划他们的教育(二元应对)。他们也更接近上帝,试图对问题有一个积极的看法,并对他们孩子的进步表示感激(宗教应对)。个体应对策略也被运用,如计划、寻求信息(以问题为中心的应对)和调节情绪、发展积极感知(以情绪为中心的应对)。特别是,宗教在接受孩子的状况和寻找幸福的过程中起着至关重要的作用。这项研究可能对未来关于养育压力的研究有启示意义,特别是在患有AS的儿童的父亲群体中。此外,自闭症儿童的父亲需要改善他们的应对策略,并从各种来源获得社会支持来管理他们的压力。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Stres pengasuhan dan peran coping pada ayah yang memiliki anak dengan spektrum autisme
The aim of this study is to understand parenting stress and coping strategies in fathers who have children with AS (autism spectrum). This research used a phenomenological qualitative approach. The data were collected using semi-structured interviews and observation of four fathers who have children with AS aged adolescent to young adult. The participants were obtained through snowballing sampling. The results showed that the fathers experienced stress from various challenges. The primary source of stress is financial because they are responsible for financing their children’s needs. To manage the stress, fathers used various coping strategies. They collaborated with their wives in the process of accepting their child-ren's condition and planning their education (dyadic coping). They also got closer to God, tried to have a positive view of the problems, and were grateful for the progress of their children (religious coping). Individual coping strategies are also used, such as planning, seeking in-formation (problem-focused coping) and regulating emotions, developing positive perception (emotion-focused coping). In particular, religion plays a vital role in the process of accepting the child's condition and finding happiness. This study may have implications for future stud-ies about parenting stress, especially in the father population of children with AS. In addition, fathers of children with AS need to improve their coping strategies and acquire social support from various sources to manage their stress.
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