肺活量计和正常人

Coreen Mcguire
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摘要

在2018年的一次“呼吸的生命”项目研究会议上,顾问萨拉·布斯博士讲述了一位学校老师的故事,这位老师在站在全班学生面前时,感到了持续收紧腹部的压力,以至于她随后的肋侧呼吸(从胸部呼吸)倾向影响了她完全呼吸的能力,结果导致她的呼吸问题加剧。当我坐着听布斯博士的演讲时,我想知道:在这个世界上,作为一名女性的这种生活经历对我们填满肺部的能力有多大影响?难道我们没有公平地呼吸空气吗?我认为,我们还必须考虑生活经历对呼吸的影响。我们体验呼吸困难的方式是由思想和身体共同调节的。此外,呼吸困难的程度不能始终与疾病的不同阶段联系在一起然而,试图用诸如肺活量测定法提供的客观测量方法来捕捉这种体验,却掩盖了这种多维质量因此,在严格的医学范式中对呼吸困难的测量在某种程度上特权于呼吸困难的生理症状,而不能解释病人的生活经验越来越多的研究人员已经证明了呼吸困难的主观个性与其数值相关性之间的脱节在本章中,我认为,考虑到测量气喘的历史,有助于阐明这种反复出现的客观和主观测量之间的脱节。本章探讨了将呼吸困难转化为可量化、可扩展的措施的动力是如何受到医疗专业知识、工业利益和补偿方案之间复杂的历史相互作用的影响的。考虑到这些历史上的相互作用,突出了我们在不同程度上决定哪些群体被视为医学上的相关过程
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The spirometer and the normal subjects
During one of the Life of Breath project research meetings in 2018, consultant Dr Sara Booth recounted the story of a school teacher who felt such pressure to consistently hold her stomach in when standing in front of the class that her subsequent propensity to breathe costally (from her chest) impacted on her ability to breathe in fully – with the result that her respiratory problems were exacerbated. As I sat listening to Dr Booth talk, I wondered: how much does such lived experience of being a woman in the world impact on the ability to fill our lungs? Are we not taking our fair share of air? I argue here that we must also consider how life experiences might impact on respiration. The way that we experience breathlessness is moderated by both the mind and the body. Furthermore, levels of breathlessness cannot be consistently linked to discrete phases of illness.1 Yet attempts to capture this experience with objective measures such as those offered by spirometry have obscured this multidimensional quality.2 As a result, the measurement of breathlessness in a strictly medical paradigm has privileged the physiological symptoms of breathlessness in a way that fails to account for the lived experience of the patient.3 Increasingly, researchers have demonstrated disconnect between the subjective individuality of breathlessness and its numerical correlation.4 In this chapter I argue that considering the history of the measurement of breathlessness sheds light on this recurring disjunct between objective and subjective measures. This chapter explores how the drive to translate breathlessness into quantifiable, scalable measures has been influenced by complex historical interactions between medical expertise, industrial interests and compensation schemes. Considering these historical interactions highlights the related processes by which we have variously decided which groups counted as medically
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