在线参与式观察:在线抑郁症社区对抑郁症治疗的讨论

Hsin-Che Wu
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引用次数: 0

摘要

本文采用在线参与式观察的方法,对中国大陆“阳光工程心理互助论坛”的2000多篇帖子进行分析。研究观察了匿名论坛中在线患者社区对抑郁症的讨论,包括疾病医学知识的普及、患者诊断和治疗经验的自我披露、患者互动以及患者对争议问题和疾病谣言的讨论。研究结果表明,抑郁症患者的在线社区既是一个“信息网”,也是一个“互助网”。患者的健康信息获取模式由纵向接收转变为横向互联,既增强了患者对疾病的科学认识,又增加了患者在人际交往中的心理安全感。在这种新型的风险沟通模式下,如何建立一种新的事实核查机制,建立普通民众对科学和医学知识的信任,是一个新的挑战。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
An Online Participatory Observation: The Online Depression Community's Discussion on Depression Treatment
This article uses the online participatory observation method to analyze more than 2,000 posts of the "Sunshine Project Psychological Mutual Assistance Forum" in Mainland China. The research observed the discussion of depression in the online patient community in anonymous forums, including the popularization of medical knowledge about diseases, self-disclosure of patient diagnosis and treatment experience, patient interaction, and patient discussions on controversial issues and rumors of the disease. The results of the study show that the online community of depression patients is both a "web of information" and a "web of mutual help." The patient's health information acquisition mode has changed from vertical reception to horizontal interconnection, which not only enhances patients' scientific understanding of the disease but also allows them to increase their sense of psychological security in their interpersonal interactions. In this new type of risk communication mode, how to establish a new fact-checking mechanism and establish ordinary people's trust in scientific and medical knowledge is a new challenge.  
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