尼日利亚一家新的三级医院对先天性畸形儿童父母的知识、态度和看法

S. Olori
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引用次数: 0

摘要

背景:先天畸形(CAs)也被称为出生缺陷,是世界健康指数中的一个重大缺陷。它们发生在所有活产婴儿的3%-5%,是造成高死亡率和发病率的原因,特别是在婴儿期。目的:本研究的目的是评估在我们的环境中,家长对亲子关系的认知、态度和认知。材料和方法:本研究是一项横断面研究,要求同意其子女患有CAs的父母在其子女到我院儿科外科门诊就诊后完成半结构化问卷。除了少数不识字的父母外,问卷是自行填写的,他们聘请了一名口译员协助他们填写表格。结果:共收回60份问卷,其中7份因填写不完整而被拒绝,占问卷总数的11.6%。儿童出现的模态年龄为0-1个月。有32名男孩和21名女孩,男女比例为1.5:1。在21种不同的ca中,巨结肠病和脊柱裂是最常见的ca,各占7例(13.2%)。22人(41.5%)认为这种情况会影响孩子的成长,但只有20人(37.7%)能说明如何影响。15人(28.8%)认为这些缺陷会对子女的社会评价和社会相关性产生负面影响;然而,有37人(37.2%)持相反意见。结论:在本研究中,家长对美容效果和生长缺陷的担忧程度较高。父母对如何用这些ca抚养孩子的倾向表明了他们对这些ca的了解程度。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Knowledge, attitude, and perception of parents of children with congenital anomalies seen at a new tertiary hospital in Nigeria
Context: Congenital anomalies (CAs) which are also known as birth defects constitute a major deficit in health indices of the world. They occur in 3%–5% of all live births and are responsible for high mortality and morbidity, especially in the infancy. Aim: This study aims to evaluate the knowledge, attitude, and perception of CAs by parents in our environment. Materials and Methods: This was a cross-sectional study in which consenting parents whose children had CAs were asked to participate by completing the semi-structured questionnaire at the end of clerking their children who presented to the pediatric surgical outpatient clinic of our hospital. The questionnaires were self-administered except for few parents who were not literate for whom an interpreter was engaged to assist them in completing the forms. Results: Sixty forms were returned completed, but seven were rejected due to poor completion representing 11.6% of the total questionnaires. The modal age at which the children presented was 0–1 month. There were 32 males and 21 females children giving a male-to-female ratio of 1.5:1. Of a total of twenty-one different CAs, Hirschsprung's disease, and spinal bifida were the most common CAs, each accounting for seven (13.2%). Twenty-two (41.5%) of respondents thought the condition could affect the development of their children, but only 20 (37.7%) could state how they would. Fifteen (28.8%) respondents believed that the defects would negatively impact the social rating and societal relevance of their children; however, 37 (37.2%) thought otherwise. Conclusion: In this study, parental concerns about the cosmetic effects and growth deficit were high. Parent's disposition on how to raise their children with these CAs points to the level of knowledge they had about them.
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