辅助技术促进患有Rett综合征的儿童和青少年的适应技能

Donatella Ciarmoli
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引用次数: 0

摘要

Rett综合征属于罕见的遗传综合征,其特征是智力迟缓、广泛的运动障碍、缺乏语言和沟通困难、感觉缺陷和适应性反应问题。这种临床状况可能会损害他们的社会形象、地位和生活质量。解决这一问题的一种做法是基于技术的干预。对患有RTT的儿童使用辅助技术,特别是微开关,已被证明可以有效地改变对他们生活质量的影响,促进他们参加娱乐活动并提高他们的表现。通过使用技术辅助方案,患有RTT和多重残疾的儿童将确保能够独立地获得积极的刺激。在本章中,选择性文献综述进行了考虑Rett综合征,辅助技术,生活质量和罕见的遗传综合征。经验数据证明了干预与AT的有效性和适用性,允许参与者提高他们的独立性水平。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Assistive Technology to Promote Adaptive Skills in Children and Adolescents With Rett Syndrome
Rett syndrome is classified within the rare genetic syndromes, characterised by intellectual delays, extensive motor impairments, lack of speech and communication difficulties, sensorial deficits, and problems in adaptive responding. That clinical conditions may be deleterious on their social image, status, and quality of life. A practice for addressing this problem is technology-based interventions. The use of assistive technologies, in particular microswitches, with children with RTT has been shown to effectively change the impact on their quality of life, facilitating access to recreational activities and improving their performance. Through the use of technology-aided programs, a child with RTT and multiple disabilities will be ensured with an independent access to positive stimulation. In this chapter, a selective literature review was carried out considering Rett Syndrome, assistive technologies, quality of life, and rare genetic syndromes. Empirical data demonstrated the effectiveness and suitability of interventions with AT, allowing participants to increase their level of independence.
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