父母教养对脑瘫儿童父母生活质量的影响:文献系统回顾

Vivek H. Ramanandi, Trupti Rudra Parmar, Juhi Kalpesh Panchal, M. Prabhakar
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引用次数: 3

摘要

目的:养育脑瘫儿童的意义是多方面的,因为父母必须应对孩子的功能限制和特殊需求,并为长期依赖的可能性做好准备。关于管理这些育儿任务的后果已经有了重要的研究。本文回顾了有关父母对CP患儿的影响的文献,并对相关因素进行了总结。方法:系统地检索在线数据库,根据所选文章的参考文献列表,确定进一步的研究。对符合纳入标准的36篇文献进行了分析。结论与启示:由于儿童行为和认知问题、照顾者自我效能低和社会支持低等因素,CP儿童的父母生活质量较低,与高水平的压力和抑郁有关。本文讨论了这些研究结果在规划和发展针对整个家庭的干预措施方面的影响。目的是提高父母的能力和资源,使他们能够更好地应付养育子女的需要。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Impact of Parenting a Child with Cerebral Palsy on the Quality of Life of Parents: A Systematic Review of Literature
Purpose: The implications of parenting a child with cerebral palsy (CP) are multifaceted, as parents have to cope with their child’s functional limitations and specific needs, and prepare for the possibility of long-term dependence. There has been significant research on the consequences of managing these parenting tasks. This article reviews the literature on the effects of parenting children with CP, and summarises the related factors. Methods: A systematic search of online databases was conducted and, based on the reference lists of selected articles, further studies were identified. Thirty-six articles that met the inclusion criteria were analysed. Conclusion & Implication: Parents of children with CP were found to have lower quality of life, associated with high levels of stress and depression, due to factors such as child behaviour and cognitive problems, low caregiver self-efficacy and low social support. The implications of these findings in relation to the planning and development of interventions addressing the family as a whole are discussed. The aim is to enhance parents’ competence and resources so that they are better able to cope with the demands of parenting their children.
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