iManageCancer:开发癌症疾病患者赋权和自我管理平台

H. Kondylakis, A. Bucur, F. Dong, C. Renzi, A. Manfrinati, N. Graf, S. Hoffman, L. Koumakis, G. Pravettoni, K. Marias, M. Tsiknakis, Stephan Kiefer
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引用次数: 51

摘要

癌症研究使更多的癌症患者得到治愈,更多的人得以与癌症共存。因此,一些癌症现在被认为是一种慢性疾病,患者及其家属面临着在自己的护理和某些情况下在治疗中发挥积极作用的挑战。在这个方向上,iManageCancer项目旨在提供一个根据患者群体需求设计的癌症特定自我管理平台,同时关注癌症患者的福祉。在本文中,我们展示了通过调查、研讨会和对三份白皮书的分析收集到的用例需求,然后我们解释了相应的系统架构。详细描述了所设计平台的主要技术组成,展示了平台的发展现状,并讨论了进一步的研究方向。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
iManageCancer: Developing a Platform for Empowering Patients and Strengthening Self-Management in Cancer Diseases
Cancer research has led to more cancer patients being cured, and many more enabled to live with their cancer. As such, some cancers are now considered a chronic disease, where patients and their families face the challenge to take an active role in their own care and in some cases in their treatment. To this direction the iManageCancer project aims to provide a cancer specific self-management platform designed according to the needs of patient groups while focusing, in parallel, on the wellbeing of the cancer patient. In this paper, we present the use-case requirements collected using a survey, a workshop and the analysis of three white papers and then we explain the corresponding system architecture. We describe in detail the main technological components of the designed platform, show the current status of development and we discuss further directions of research.
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