分析新西兰遗传服务的信息管理需求

Yulong Gu, J. Warren
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引用次数: 0

摘要

卫生保健系统内遗传服务的发展是一种全球性现象,对遗传信息的管理提出了挑战。本文描述了一项正在进行的定性研究,以收集新西兰(NZ)遗传服务中有关遗传信息管理的利益相关者观点。我们正在进行半结构化访谈,以了解他们的经历、期望和关注点。数据分析采用一般归纳方法,采用分析比较策略和评价研究技术。这项研究借鉴了过去的社会和健康科学理论,我们在新西兰遗传学背景下的经验,以及该领域的新问题。该研究结果将为遗传服务系统如何运作以及它应该走向何方提供更深入的见解。项目可交付成果将包括利益相关者需求、新西兰遗传信息管理原则和目标的结构化综合。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Towards Analysing Information Management Requirements in New Zealand Genetic Services
The development of genetic services within healthcare systems is a global phenomenon that raises challenges for managing genetic information. This paper describes an ongoing qualitative study to collect stakeholder perspectives of New Zealand (NZ) genetic services concerning genetic information management. We are conducting semi-structured interviews to build an understanding of their experiences, expectations, and concerns. The data analysis takes a general inductive approach with an analytic comparison strategy and evaluation research techniques. This study draws on past social and health science theories, on our experience in the NZ genetics context, and on emerging issues in the domain. The study result will provide deeper insights on how the genetic service system works and where it should go. The project deliverables will include a structured synthesis of stakeholder requirements, NZ genetic information management principles and goals.
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