伊朗自闭症谱系障碍登记信息系统的发展:简要报告

Ensyeh Jenabi, Mohammad Rezaei, Mahdieh Seyedi, S. Bashirian, Sepideh Zareian, S. Khazaei
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引用次数: 1

摘要

背景:该登记处将为研究人员在医学和神经心理科学的许多领域进行各种研究提供充分的动力。目的:到目前为止,伊朗还没有建立自闭症谱系障碍(ASD)的登记系统。因此,本研究旨在在伊朗西部城市之一的哈马丹建立ASD信息登记系统。方法:在实施本方案之前,对18个月大的儿童进行ASD筛查。数据收集将使用研究人员制作的问卷。数据管理网站将通过注册过程对所有已完成的问卷进行审查。结果:开发的登记系统是调查自闭症谱系障碍、准确认识问题实质的宝贵工具。在哈马丹,与伊朗其他地区以及全世界范围内类似,被诊断患有自闭症谱系障碍的儿童数量正在增加。结论:通过该登记系统获取的信息,可以为ASD儿童及其受影响家庭提供必要的服务和设施。此外,通过ASD登记系统从大量人群中获得的数据将促使研究人员发现环境和遗传对ASD病因成分的贡献。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Development of Informative System of Autism Spectrum Disorders Registry in Iran: A Brief Report
Background: The registry will provide adequate motivation for researchers to conduct various studies in numerous fields of medical and neuropsychological sciences. Objectives: Up to the present, no registry system for autism spectrum disorder (ASD) has been developed in Iran. Therefore, the present study aimed at the generation of the protocol to develop an informative system of ASD registry in Hamadan, one of the western cities of Iran. Methods: Before conducting this protocol, screening of 18-month-old children for ASD was executed. A researcher-made questionnaire will be used for data collection. The Data Management website will keep under review all accomplished questionnaires through the registration process. Results: The developed registry system is a precious tool to survey ASD and accurately conceive the essence of the problem. In Hamadan, similar to other parts of Iran and on a larger scale worldwide, the number of children diagnosed with ASD is increasing. Conclusions: The essential services and facilities will be provided for children with ASD and their affected families through the obtained information from this registry system. In addition, the obtained data from a large population by the registry system for ASD will induce researchers to discover environmental and genetic contributions to the etiological components of ASD.
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