土著居民健康研究项目的长篇故事

Patrick Sullivan, Cari D. McIlduff
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引用次数: 0

摘要

土著居民在卫生方面的不平等现象是卫生研究和规划工作面临的重大挑战。寻求解决这些不平等问题的研究也面临着重大挑战。为了指导研究人员应对这些挑战,存在一些资源。也就是说,土著研究的真实世界是复杂的,经验表明,它包含了很多现有资源无法解释的东西。因此,本文完整而诚实地讲述了在西方体制下进行研究的故事,以及它们对尊重自决和文化的土著社区卫生研究构成的障碍。在与讨论相关的情况下,将提供最近完成的COVID-19疫苗促进研究项目的例子。在讲述这个故事的过程中,提出了许多问题,其中一些问题暂时得到了回答,还有许多问题留给了思考和未来的工作。当给出答案时,它们通常来自个人经验,因此,结论应该谨慎对待。无论如何,优先考虑尊重和真实的关系似乎是一个通用的指南针,可以引导研究人员走向正确的道路。然而,可能需要更加一致和诚实地报道障碍、失败和机会,以真正反映伦理土著研究的挑战性现实。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The Long Story of an Indigenous Health Research Project
Indigenous health inequities represent a significant challenge for health research and programming. The research seeking to address these inequities also faces significant challenges. To guide researchers through these challenges, several resources exist. That said, the real world of Indigenous research is complex and contains much that, experience suggests, is not accounted for by existing resources. Therefore, this article tells the full and honest story of conducting research within largely Western systems the barriers they present to Indigenous community-based health research that respects self-determination and culture. When relevant to discussion, examples will be provided from a recently completed COVID-19 vaccine promotion research project. In telling this story, many questions are posed, some of these are tentatively answered, and many are left for contemplation and future work. When answers are provided, they often stem from personal experience, and so, conclusions should be approached cautiously. Regardless, prioritizing respectful and authentic relationships appears to be a universal compass that can guide researchers to the good way. Still, more consistent and honest reporting of barriers, failures, and opportunities may be needed to truly reflect the challenging realities of ethical Indigenous research.
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