{"title":"肱桡瘙痒:寻求理解和护理的孤儿患者","authors":"D. Gijima, D. Elpern","doi":"10.4018/IJUDH.2012100106","DOIUrl":null,"url":null,"abstract":"The authors present a case study around an entity named ‘brachioradial pruritus’ a neurogenic itch which typically occurs on the dorsolateral forearm but may also involve the upper arm and shoulders, and less commonly the back. The disease at this time does not have a known treatment and the authors not only discuss the isolation of these patients which is exacerbated by the ignorance or indifference of most medical personnel to this often debilitating condition but also from their shared learning experiences from a web based platform propose an algorithm that may be useful for others who need to deal with this condition.","PeriodicalId":211533,"journal":{"name":"International Journal of User-Driven Healthcare","volume":"108 ","pages":"0"},"PeriodicalIF":0.0000,"publicationDate":"2012-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Brachioradial Pruritus: Orphan Patients in Search of Understanding and Care\",\"authors\":\"D. Gijima, D. Elpern\",\"doi\":\"10.4018/IJUDH.2012100106\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"The authors present a case study around an entity named ‘brachioradial pruritus’ a neurogenic itch which typically occurs on the dorsolateral forearm but may also involve the upper arm and shoulders, and less commonly the back. The disease at this time does not have a known treatment and the authors not only discuss the isolation of these patients which is exacerbated by the ignorance or indifference of most medical personnel to this often debilitating condition but also from their shared learning experiences from a web based platform propose an algorithm that may be useful for others who need to deal with this condition.\",\"PeriodicalId\":211533,\"journal\":{\"name\":\"International Journal of User-Driven Healthcare\",\"volume\":\"108 \",\"pages\":\"0\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2012-10-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"International Journal of User-Driven Healthcare\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.4018/IJUDH.2012100106\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"International Journal of User-Driven Healthcare","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.4018/IJUDH.2012100106","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
Brachioradial Pruritus: Orphan Patients in Search of Understanding and Care
The authors present a case study around an entity named ‘brachioradial pruritus’ a neurogenic itch which typically occurs on the dorsolateral forearm but may also involve the upper arm and shoulders, and less commonly the back. The disease at this time does not have a known treatment and the authors not only discuss the isolation of these patients which is exacerbated by the ignorance or indifference of most medical personnel to this often debilitating condition but also from their shared learning experiences from a web based platform propose an algorithm that may be useful for others who need to deal with this condition.