从民族志和定性研究的不确定性到常态:个人观点

The Journal of Haemophilia Practice Pub Date : 2020-01-01 DOI:10.17225/jhp00170

D. Page

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摘要

对于一个70年前就患有血友病的人来说，读到这篇非常有见地的文章“我们还能要求什么?”Hughes等人在本期《血友病实践杂志》上发表了一项关于血友病患者面临的挑战和可能性的人种志研究。在过去的七十年里，医学治疗取得了奇迹般的进步，从新鲜的冷冻血浆到低温沉淀和一系列的因子浓缩物，再到非因子治疗，现在又到了基因治疗的尖端

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Uncertainty to normality using ethnographic and qualitative research: a personal view

I t is fascinating for a person born with haemophilia almost 70 years ago to read the very insightful paper ‘What more can we ask for?: an ethnographic study of challenges and possibilities for people living with haemophilia’ by Hughes et al. in this issue of the Journal of Haemophilia Practice. While medical treatments have advanced miraculously over the last seven decades, from fresh frozen plasma to cryoprecipitate and a whole range of factor concentrates, to non-factor therapies and now to the cusp of gene therapy, the

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The Journal of Haemophilia Practice

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