Ngununggula:原住民癌症治疗小组的故事

Janelle Trees, Trish Levett, Kyla Wynn, R. Ivers
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摘要

在新南威尔士州的达拉瓦尔地区,一个小型而强大的团队为澳大利亚土著人、他们的家庭和社区提供癌症预防、筛查、支持和护理。为了与土著居民的习俗和价值观保持一致,他们独特的整体方法涵盖了从食品安全和寻找儿童保育,到在诊断、手术、放射或化疗方面提供支持,再到举行葬礼、促进祈祷团体和为癌症幸存者及其照顾者举行仪式等方方面面。该小组为土著保健工作者和土著社区控制的保健服务的其他工作人员编写了一本手册,同时还编写了培训网络研讨会和模块。该方案还为在医院工作的土著联络官和姑息治疗工作人员设计。这本书和训练模块被称为Ngununggula。这个名字来自冈顿古拉语,意思是一起工作和走路。“我们将向任何想要走这条路的人敞开大门,因为我们知道所有的陷阱。我们已经学会了。我们被绊倒了,不得不再次爬出来。任何想要捷径的人——更多的学习,更少的痛苦——都在这里。我们想要分享和帮助。我想让这条消息传遍全世界。我想分享资源,支持任何想要运行项目或像我们一样组建团队的人。”凯拉·韦恩,伊拉瓦拉土著医疗服务机构癌症护理小组顾问/协调员。合作伙伴包括:土著卫生和医学研究理事会、伊拉瓦拉土著医疗服务、悉尼大学、卧龙岗大学、孟席斯卫生研究学院。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Ngununggula: The story of a cancer care team for aboriginal people
In Dharawal Country in regional New South Wales, a small and powerful team provides cancer prevention, screening, support and care for Australian Aboriginal people, their families and communities. In keeping with Aboriginal practices and values, their uniquely holistic approach encompasses everything from food security and finding childcare, to support at diagnosis, surgical, radiation or chemo treatment, through to holding funerals, facilitating yarning groups, and Ceremony for survivors of cancer and their carers. The team created a manual for Aboriginal Health Workers, and other staff of Aboriginal Community Controlled Health Services, together with training webinars, and modules. The program is also designed for Aboriginal Liaison Officers and Palliative Care Workers who work in hospitals. The book and the training modules are called Ngununggula. The name, from the Gundungurra language, means working and walking together. “We’ll make ourselves available to anyone that wants to tread this path because we know all the pitfalls. We’ve learned them. We’ve tripped and had to climb out of them again. Anyone that wants the shortcuts—more learning, less pain—here they are. We want to share and help. I want the message to get out all over the place. I want to share the resources, to support anyone else who wants to run programs or build a team like we do.” Kyla Wynn, Counsellor/Co-ordinator Cancer Care Team, Illawarra Aboriginal Medical Service. Partners include: Aboriginal Health and Medical Research Council, Illawarra Aboriginal Medical Service, University of Sydney, University of Wollongong, Menzies School of Health Research.
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