脑性麻痹儿童行为与照顾者压力水平的关系

Hafiz Muhammad Asim Raza, Hira Jabeen, Atiq Ijaz, Binash Afzal, S. Mumtaz, Hafiz Muhammad Bilal Hanif
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摘要

儿童中常见的残疾被称为脑瘫(CP)。其在巴基斯坦的患病率要高得多,每1000名儿童中约有2至3名被诊断患有CP,这在更大程度上影响了他们的生活功能状态。本研究的目的是确定CP儿童的行为与照顾者压力水平的关系。目前的研究是基于横断面设计,包括159名CP儿童的照顾者。其中男性100人,女性59人。该研究在2016年12月至2017年5月期间进行。采用便利抽样技术,根据知情同意后的纳入和排除标准,从巴基斯坦拉合尔的不同医院和康复中心选择受试者。标准化的“父母压力量表”和“力量困难问卷”有助于确定压力水平和照顾者负担。采用SPSS v20对数据进行分析。使用PSS和SDQ计算频率,得到照顾者压力和CP儿童行为的平均值。P值≤0.05认为有统计学意义。PSS与SDQ数据的Pearson相关(r)为r±0.63,表明CP儿童行为与照顾者压力水平两个变量之间存在较强的线性正相关。它表明这两个变量同时增加或减少。CP儿童的行为影响父母和照顾者的生活质量。研究得出结论,CP儿童的行为与照顾者的压力水平有很强的关系。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Association of Cerebral Palsy (CP) Child Behavior with Caregiver Stress Level
The disability which occurs frequently in children is known as cerebral palsy (CP). Its prevalence in Pakistan is much higher and about 2 to 3 out of every 1000 children are diagnosed with CP, which affectstheirfunctional status of life to a greater extent. The objective of the current study was to determine the association of CP child's behavior with caregiver's stress level. The current study was based on a cross sectional design and itcomprised 159 caregivers of CP child. Among them 100 were males and 59 were females. The study was conducted within the time period from December 2016 to May 2017. A convenience sampling technique was used and subjects were selected from different hospitals and rehabilitation centers of Lahore, Pakistan on the basis of inclusion and exclusion criteria after taking informed consent. The two standardized “parental stress scale” and “strength difficulty questionnaire” helped to determine the level of stress and caregiver' burden. The data was analyzed using SPSS v20. The frequency was calculated to obtain mean values of caregiver stress and behavior of CP child using PSS and SDQ. P value ≤ .05 was considered statistically significant. The Pearson correlation (r) between PSS and SDQ data was r₌ 0.63, which showed a strong positive linear correlation between the two variables, that is, CP child behavior & caregiver stress level. It indicated that both variables increased or decreased together. The behavior of CP child affects the quality of life of parents and caregivers. The study concluded that there is a strong relationship between the CP child's behavior with the caregiver’s stress level.
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