脑瘫儿童家庭支持、社会支持、大动作技能与生活质量的关系

Alinda Nur Ramadhani, Rita Benya Adriani, Harsono Salimo
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引用次数: 0

摘要

背景:脑瘫(CP)的患病率约为千分之二,是儿童时期最常见的身体残疾,被认为是一种永久性的运动和姿势障碍。生活质量评估(QOL)越来越多地被用作一种机制,以深入了解儿童的生活,确定生活中积极或具有挑战性的领域,并告知和评估干预措施。本研究旨在确定脑瘫儿童的家庭支持、社会支持、大动作技能和生活质量之间的关系。对象和方法:这是一项横断面研究,于2018年4月至5月在中爪哇省苏拉卡塔的残疾儿童护理基金会(YPAC)和儿科神经发育治疗中心进行。选取110例脑瘫患儿为研究对象,采用固定疾病抽样。因变量是生活质量。自变量为家庭支持、社会支持和大动作技能。采用脑性麻痹生活质量(CP-QOL)问卷收集生活质量数据,采用多元logistic回归模型进行分析。结果:强有力的家庭支持提高了患者的生活质量(OR= 1.22;95% CI= 0.22 ~ 2.22;p= 0.016)和粗大运动技能(OR= 2.79;95% CI= 1.44 ~ 4.15;p = 0.001)。低社会支持降低了生活质量(OR= 0.91;95% CI= - 0。76 - 1.91;p = 0.070)。结论:家庭支持和粗大运动技能提高了患者的生活质量,而低社会支持则降低了患者的生活质量
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The Association between Family Support, Social Support, Gross Motoric Skill, and Quality of Life among Children with Cerebral Palsy
Background: With a prevalence of approximately 2 per 1,000 births, cerebral palsy (CP) is the most common physical disability in childhood and is considered to be a permanent disorder of movement and posture. Assessment of Quality of Life (QOL) is increasingly used as a mechanism to gain insight into a child’s life, to identify areas of life that are positive or challenging and to inform and evaluate interventions. This study aimed to determine the association between family support, social support, and gross motoric skill, and quality of life, among children with cerebral palsy. Subject and Method: This was a cross sectional study conducted at Fondation for the Care of Disable Children (YPAC) and Pediatric Neurodevelopmental Therapy Center, Surakarta, Central Java, from April to May 2018. A sample of 110 children with cerebral palsy was selected for this study with fixed disease sampling. The dependent variable was quality of life. The independent variables were family support, social support, and gross motoric skill. The data quality of life collected by Cerebral Palsy Quality of Life (CP-QOL) questionnaire and analyzed by a multiple logistic regression model. Results: Quality of life was increased by strong family support (OR= 1.22; 95% CI= 0.22 to 2.22; p= 0.016) and gross motoric skill (OR= 2.79; 95% CI= 1.44 to 4.15; p=0.001). Quality of life was decreased by low social support (OR= 0.91; 95% CI= -o.76 to 1.91; p=0.070). Conclusion: Quality of life is increased by family support and gross motoric skill, but is decreased by low social support
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