尼泊尔拉利特普尔B&B医院非患者人群的癌症污名:一项描述性横断面研究

R. Shrestha, Gambhir Shrestha, Pragya Paneru
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摘要

引言:近年来,对癌症各个方面的研究,包括癌症患者的耻辱感的研究受到了相当大的关注,但很少有研究在健康人群中研究癌症相关的耻辱感。本研究旨在评估非患者人群中癌症耻辱感的情况。方法:本横断面研究纳入了2019年3月至2019年8月在尼泊尔拉利特普尔B&B医院就诊的330名年龄在18-45岁的非患者人群。数据是从自我填写的问卷中收集的。癌症病耻感采用经过验证的癌症病耻感量表进行测量,该量表评估了严重性、个人责任、尴尬、回避、政策反对和经济歧视六个子领域。结果:癌症耻感量表中“严重程度”得分最高,“政策反对”得分最低。反对政策的观点是“应该把更多的政府资金用于癌症患者的护理和治疗”和“应该把癌症患者放在首位”,获得了最高的支持率(75.4 - 81.6%),其次是“他们对癌症患者的舒适度”(59.5%),“保险公司一旦诊断出癌症就会重新考虑保险单的可接受性”(54.5%)。同样比例的人认为患癌症是为死亡做准备(38.5%),癌症患者应为其病情负责(33.7%)。结论:在尼泊尔,癌症病耻感在不同的病耻感领域持续存在。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Cancer Stigma in Non-patient Population Visiting B&B Hospital, Lalitpur, Nepal: A Descriptive Cross-sectional Study
Introduction: Research on various aspects of cancer, including stigma among cancer patients have received considerable interest in the recent years, but very few studies have studied cancer related stigma in healthy population. This study aimed to assess the situation of cancer stigma among the non-patient population.Methods: This cross-sectional study included 330 purposively selected non-patient population of age 18-45 years visiting B&B Hospital, Lalitpur, Nepal from March 2019 to August 2019. The data was collected from self-administered questionnaires. Caner stigma was measured with the validated Cancer Stigma Scale, which assesses six sub domains viz. severity, personal responsibility, awkwardness, avoidance, policy opposition and financial discrimination. Results: The highest score in Cancer Stigma Scale was found in the “severity”, while the lowest in the “policy opposition”. The policy opposition statements “More government funding should be spent on care and treatment of those with cancer” and “cancer patients should be given top priority” attracted the highest level of agreement (75.4 - 81.6%) followed by the statement about their comfort with cancer patients (59.5%), the acceptability for insurance companies to reconsider a policy once diagnosed with cancer (54.5%). A similar proportion felt getting cancer is to be prepared for death (38.5%) and a cancer patient is to be blamed for its condition (33.7%). Conclusions: Cancer stigma persists in Nepal with varying level in different domains of stigma.
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