利用技术帮助多发性硬化症(MS)患者在管理自己的医疗保健方面做出共同决策

H. King, D. Slattery
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引用次数: 0

摘要

2014年,英国国民保健服务(NHS)“五年展望”计划提出了改革NHS的关键目标,其中包括赋予全体人口(特别是那些有长期健康状况的人)更多的责任来管理自己的医疗保健,并引入利用技术改善服务和降低成本的举措。“长期计划”解释了2014年倡议将如何进一步发展。本章介绍了关于数字健康信息和信息可用性的文献综述。本文介绍了一项混合方法研究的主要发现,该研究探索了多发性硬化症患者(PwMS)在试图管理其多发性硬化症时如何访问和使用健康数字信息。虽然研究发现,有许多高质量的数字健康信息可用于PwMS,并且这有助于共享决策,但仍然缺少一些必要的信息。本章最后对数字卫生信息提供者提出了建议。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Using Technology to Empower People With Multiple Sclerosis (MS) to Make Shared Decisions About Managing Their Own Healthcare
In 2014, the UK National Health Service (NHS) ‘Five Year Forward View' plan set out key objectives to reform the NHS, which included empowering the population as a whole (particularly those with long-term health conditions) to take more responsibility for managing their own healthcare and introducing initiatives to use technology to improve services and reduce costs. The “Long Term Plan” explains how the 2014 initiatives will be further developed. This chapter presents a review of literature on digital health information and information usability. It presents the key findings from a mixed methods study that explored how people with MS (PwMS) access and use health digital information when trying to manage their MS. While the study found that there is much good quality digital health information available for PwMS, and that this facilitates shared decisions, some necessary information is still missing. The chapter concludes with recommendations for digital health information providers.
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