美国西班牙语家庭自闭症诊断的延迟:预约可用性的贡献。

Alison E Chavez, Melanie S Feldman, Alice S Carter, Abbey Eisenhower, Thomas I Mackie, Leah Ramella, Noah Hoch, R Christopher Sheldrick
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引用次数: 4

摘要

促进保健服务的公平需要了解产生不平等的机制。采用顺序、混合方法、解释性研究设计,我们分析了353个家庭中儿童、家庭和组织层面的因素及其与ASD诊断评估等待时间的关系,这些家庭安排了英语和西班牙语预约(27%为西班牙语)。一部分家长和照顾者参加了英语和西班牙语焦点小组,以提供他们对诊断过程的看法。与英语相比,西班牙语与更大的完成度和更长的评估时间相关。唯一被发现与评估时间有中介关系的变量是预约的可用性——一个组织因素。定性结果阐明了西班牙语评估完成程度较高的潜在原因(例如,基于社区的诊断选择较少)。结果作为一个案例研究,支持分析组织层面因素对儿童健康和心理健康服务延迟和差异的影响的效用和重要性。我们讨论了我们的研究结果与可以广泛应用于支持儿童诊断和干预服务的公平服务获取的策略有关。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Delays in autism diagnosis for U.S. Spanish-speaking families: The contribution of appointment availability.

Promoting equity in health services requires an understanding of the mechanisms that produce disparities. Utilizing a sequential, mixed-methods, explanatory study design, we analyzed child-, family-, and organizational-level factors and their association with wait times for an ASD diagnostic evaluation among 353 families scheduled for English and Spanish language appointments (27% Spanish language). A subset of parents and caregivers participated in English and Spanish language focus groups to provide their perspectives on the diagnostic process. Spanish language was associated with greater completion of, and time to evaluations than English language. The only variable found to mediate associations with time-to-evaluation was appointment availability - an organizational factor. Qualitative results elucidate potential explanations for greater Spanish language evaluation completion (e.g., fewer community-based diagnostic options). Results serve as a case study to support the utility and importance of analyzing the influence of organizational-level factors on delays and disparities for childhood health and mental health services. We discuss our findings in relation to strategies that can be widely applied to support equitable services access for childhood diagnostic and intervention services.

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