Hazel B Nichols, Karen J Wernli, Neetu Chawla, Ellen S O'Meara, Marlaine Figueroa Gray, Laura E Green, Christopher D Baggett, Mallory Casperson, Chun Chao, Salene M W Jones, Anne C Kirchhoff, Tzy-Mey Kuo, Catherine Lee, Marcio Malogolowkin, Charles P Quesenberry, Kathryn J Ruddy, Ted Wun, Brad Zebrack, Jessica Chubak, Erin E Hahn, Theresa H M Keegan, Lawrence H Kushi
{"title":"减少年轻人癌症负担的流行病学研究的挑战与机遇。","authors":"Hazel B Nichols, Karen J Wernli, Neetu Chawla, Ellen S O'Meara, Marlaine Figueroa Gray, Laura E Green, Christopher D Baggett, Mallory Casperson, Chun Chao, Salene M W Jones, Anne C Kirchhoff, Tzy-Mey Kuo, Catherine Lee, Marcio Malogolowkin, Charles P Quesenberry, Kathryn J Ruddy, Ted Wun, Brad Zebrack, Jessica Chubak, Erin E Hahn, Theresa H M Keegan, Lawrence H Kushi","doi":"10.1007/s40471-022-00286-9","DOIUrl":null,"url":null,"abstract":"<p><p>There are >1.9 million survivors of adolescent and young adult cancers (AYA, diagnosed at ages 15-39) living in the U.S. today. Epidemiologic studies to address the cancer burden in this group have been a relatively recent focus of the research community. In this article, we discuss approaches and data resources for cancer epidemiology and health services research in the AYA population. We consider research that uses data from cancer registries, vital records, healthcare utilization, and surveys, and the accompanying challenges and opportunities of each. To illustrate the strengths of each data source, we present example research questions or areas that are aligned with these data sources and salient to AYAs. Integrating the respective strengths of cancer registry, vital records, healthcare data, and survey-based studies sets the foundation for innovative and impactful research on AYA cancer treatment and survivorship to inform a comprehensive understanding of diverse AYA needs and experiences.</p>","PeriodicalId":48527,"journal":{"name":"Current Epidemiology Reports","volume":null,"pages":null},"PeriodicalIF":0.0000,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10495081/pdf/","citationCount":"0","resultStr":"{\"title\":\"Challenges and Opportunities of Epidemiological Studies to Reduce the Burden of Cancers in Young Adults.\",\"authors\":\"Hazel B Nichols, Karen J Wernli, Neetu Chawla, Ellen S O'Meara, Marlaine Figueroa Gray, Laura E Green, Christopher D Baggett, Mallory Casperson, Chun Chao, Salene M W Jones, Anne C Kirchhoff, Tzy-Mey Kuo, Catherine Lee, Marcio Malogolowkin, Charles P Quesenberry, Kathryn J Ruddy, Ted Wun, Brad Zebrack, Jessica Chubak, Erin E Hahn, Theresa H M Keegan, Lawrence H Kushi\",\"doi\":\"10.1007/s40471-022-00286-9\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>There are >1.9 million survivors of adolescent and young adult cancers (AYA, diagnosed at ages 15-39) living in the U.S. today. Epidemiologic studies to address the cancer burden in this group have been a relatively recent focus of the research community. In this article, we discuss approaches and data resources for cancer epidemiology and health services research in the AYA population. We consider research that uses data from cancer registries, vital records, healthcare utilization, and surveys, and the accompanying challenges and opportunities of each. To illustrate the strengths of each data source, we present example research questions or areas that are aligned with these data sources and salient to AYAs. Integrating the respective strengths of cancer registry, vital records, healthcare data, and survey-based studies sets the foundation for innovative and impactful research on AYA cancer treatment and survivorship to inform a comprehensive understanding of diverse AYA needs and experiences.</p>\",\"PeriodicalId\":48527,\"journal\":{\"name\":\"Current Epidemiology Reports\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2023-09-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10495081/pdf/\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Current Epidemiology Reports\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.1007/s40471-022-00286-9\",\"RegionNum\":3,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2022/3/29 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Current Epidemiology Reports","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1007/s40471-022-00286-9","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2022/3/29 0:00:00","PubModel":"Epub","JCR":"","JCRName":"","Score":null,"Total":0}
Challenges and Opportunities of Epidemiological Studies to Reduce the Burden of Cancers in Young Adults.
There are >1.9 million survivors of adolescent and young adult cancers (AYA, diagnosed at ages 15-39) living in the U.S. today. Epidemiologic studies to address the cancer burden in this group have been a relatively recent focus of the research community. In this article, we discuss approaches and data resources for cancer epidemiology and health services research in the AYA population. We consider research that uses data from cancer registries, vital records, healthcare utilization, and surveys, and the accompanying challenges and opportunities of each. To illustrate the strengths of each data source, we present example research questions or areas that are aligned with these data sources and salient to AYAs. Integrating the respective strengths of cancer registry, vital records, healthcare data, and survey-based studies sets the foundation for innovative and impactful research on AYA cancer treatment and survivorship to inform a comprehensive understanding of diverse AYA needs and experiences.
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