青少年特发性关节炎及其父母的过渡准备:我们的单中心经验。

IF 1.1 4区 医学 Q4 Medicine
Dragana Lazarević, Stefan Đorđević, Dušica Novaković, Maja Zečević, Gordana Sušić
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引用次数: 1

摘要

目的:我们旨在确定在过渡准备过程中与良好自我管理技能相关的青少年特发性关节炎(JIA)患者的特征,并调查JIA患者及其家人对过渡到成人医疗保健系统的准备情况。患者与方法:2021年3月至2021年6月,共44例JIA患者(男9例,女35例;中位年龄:15.1岁;年龄范围12.3 - 19.3岁)的儿童风湿病门诊和住院患者及其父母被纳入研究范围。过渡准备评估问卷(TRAQ)是跨文化适应的。所有JIA患者及其父母同时接受TRAQ。收集了人口统计学和临床数据。结果:44例JIA患者中合并合并疾病14例(31.8%),合并葡萄膜炎10例(22.7%)。其中11人(25%)有自身免疫性疾病家族史。共有21例(47.7%)JIA患者接受了生物制剂治疗。年龄与患者TRAQ总分有很强的相关性(ρ=0.799, p)。结论:JIA患者的转变准备程度随年龄的增长而增加。JIA患者及其父母的转变准备程度无显著差异。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Transition readiness in adolescents with juvenile idiopathic arthritis and their parents: Our single-center experience.

Objectives: We aimed to identify characteristics of juvenile idiopathic arthritis (JIA) patients associated with good self-management skills in the transition readiness process and to investigate the readiness of JIA patients and their families for the transition into the adult healthcare system.

Patients and methods: Between March 2021 and June 2021, a total of 44 JIA patients (9 males, 35 females; median age: 15.1 years; range, 12.3 to 19.3 years) admitted to the pediatric rheumatology outpatient and inpatient clinics and their parents were included. Transition Readiness Assessment Questionnaire (TRAQ) was cross-culturally adapted. The TRAQ was administered to all JIA patients and their parents at one point. Demographic and clinical data were collected.

Results: Fourteen (31.8%) of 44 JIA patients had a concomitant disease, while 10 (22.7%) of them had uveitis. Eleven (25%) of them had a family history of autoimmune diseases. In total, 21 (47.7%) of JIA patients were receiving biologics. There was a strong correlation between older age and total TRAQ scores among patients (ρ=0.799, p<0.001) and a moderate correlation between older patient age and total TRAQ scores among parents (ρ=0.522, p<0.001). Patient and parent total TRAQ scores were strongly correlated (ρ=0.653, p<0.001). There was no significant association of JIA patient characteristics (JIA disease subtypes, disease duration, gender, concomitant diseases, uveitis, family history of autoimmune diseases, number of hospitalizations, and treatment with biologics) with TRAQ scores and JIA patients' and parents' readiness for transition.

Conclusion: Transition readiness of JIA patients increases with advancing age. There is no significant difference between transition readiness for JIA patients and their parents.

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来源期刊
Archives of rheumatology
Archives of rheumatology Medicine-Rheumatology
CiteScore
2.00
自引率
9.10%
发文量
15
期刊介绍: The Archives of Rheumatology is an official journal of the Turkish League Against Rheumatism (TLAR) and is published quarterly in March, June, September, and December. It publishes original work on all aspects of rheumatology and disorders of the musculoskeletal system. The priority of the Archives of Rheumatology is to publish high-quality original research articles, especially in inflammatory rheumatic disorders. In addition to research articles, brief reports, reviews, editorials, letters to the editor can also be published. It is an independent peer-reviewed international journal printed in English. Manuscripts are refereed by a "double-blind peer-reviewed" process for both referees and authors. Editorial Board of the Archives of Rheumatology works under the principles of The World Association of Medical Editors (WAME), the International Council of Medical Journal Editors (ICMJE), and Committee on Publication Ethics (COPE).
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