自闭症谱系障碍儿童父母的生活质量:一项综合文献综述

IF 1.2 4区医学 Q3 NURSING

Journal for Specialists in Pediatric Nursing Pub Date : 2022-08-20 DOI:10.1111/jspn.12391

Dawn Turnage PhD, DNP, Norma Conner PhD, RN

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引用次数: 8

摘要

目的对自闭症谱系障碍(ASD)患儿父母的生活质量(QOL)进行文献综述。自闭症的发病率正在上升。自闭症儿童的父母有更高的压力和负担，这可能导致较低的生活质量。设计与方法进行全面的电子检索，检索到15篇相关文章，包括5565名参与者。进行综合评价和综合研究结果。结果ASD患儿父母的生活质量在生理、心理、社会健康和精神方面均低于非ASD患儿父母的成年人。影响父母生活质量的最大危险因素是ASD诊断的严重程度。父母生活质量的保护因素为父母受教育程度和儿童ASD严重程度。实践意义护士可以通过量身定制的资源来支持早期诊断和干预，通过支持影响低收入家庭的政策，以及通过提高对严重ASD及其对儿童和家庭的影响的认识，来支持受ASD影响的家庭，特别是严重ASD。

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Quality of life of parents of children with Autism Spectrum Disorder: An integrative literature review

Purpose

This paper presents an integrated literature review of the quality of life (QOL) in parents of individuals with Autism Spectrum Disorder (ASD). The rate of ASD is increasing. Parents of children with ASD have higher levels of stress and burden, which may lead to lower QOL.

Design and Methods

A comprehensive, electronic search was performed to retrieve 15 relevant articles, including 5565 participants. An integrative review was performed to appraise and synthesize findings.

Results

QOL was found to be lower in parents of children with ASD in physical, psychological, and social health and in spirituality, as compared with adults who were not parents of children with ASD. The strongest risk factor for parental QOL was the severity of the diagnosis of ASD. Protective factors for parental QOL were parent education level and levels of severity of ASD in the child.

Practice Implications

Nurses can support families impacted by ASD, particularly severe ASD, through tailored resources to support early diagnosis and intervention, through the support of policies affecting low-income families, and through increased awareness of severe ASD and its' impact on the child and the family.

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来源期刊

Journal for Specialists in Pediatric Nursing 医学-护理

CiteScore

2.50

自引率

7.70%

发文量

审稿时长

>12 weeks

期刊介绍： Linking science and practice by publishing evidence-based information on pediatric nursing and answering the question, ''How might this information affect nursing practice?'' The Journal for Specialists in Pediatric Nursing (JSPN) is the international evidence-based practice journal for nurses who specialize in the care of children and families. JSPN bridges the gap between research and practice by publishing peer-reviewed reliable, clinically relevant, and readily applicable evidence. The journal integrates the best evidence with pediatric nurses'' passion for achieving the best outcomes. The journal values interdisciplinary perspectives and publishes a wide variety of peer-reviewed papers on clinically relevant topics.