一个团结悖论——全球健康数据经济中的福利国家数据。

IF 1.9 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH
Health Pub Date : 2023-09-01 DOI:10.1177/13634593211069320
Karoliina Snell, Heta Tarkkala, Aaro Tupasela
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引用次数: 4

摘要

北欧福利国家在从公民那里收集健康和社会福利数据方面有很好的制度化做法。人口登记制度的建立与福利国家机构和以团结为基础的社会契约的建立不谋而合。在过去十年中,北欧登记册和卫生数据的重要性有所增加,它们已成为经济价值的来源。最近的政策期望登记册、健康数据和生物银行吸引国际投资,使北欧国家在全球健康数据经济中处于世界领先地位。在这篇文章中,我们质疑在新兴的数据驱动的卫生经济团结的条件和边界。我们认为,福利国家和数据驱动的卫生经济的逻辑创造了一个悖论——没有福利国家数据制度就不可能有数据经济,但数据驱动的卫生经济的逻辑与福利国家数据制度的价值基础相矛盾,因此数据收集和使用的理由变得值得怀疑。我们发展了团结的概念来描述一个过程,通过这个过程,个人被期望以团结的方式行为,以支持数据收集和相关的政策过程。我们通过芬兰最近的立法和数据基础设施改革证明了团结悖论,并讨论了关于团结的学术文献。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

A solidarity paradox - welfare state data in global health data economy.

A solidarity paradox - welfare state data in global health data economy.

Nordic welfare states have well institutionalised practises of gathering health and social wellbeing data from their citizens. The establishment of population registers coincided with the building of welfare state institutions and a social contract relying on solidarity. During the last decade, the significance of Nordic registers and health data has increased and they have become sources of economic value. Recent policies expect registers, health data and biobanks to attract international investments, making Nordic countries world-leaders in the global health data economy. In this article we question the conditions and boundaries of solidarity in the emerging data-driven health economy. We argue that the logics of welfare state and data-driven health economy create a paradox - the data economy is not possible without the welfare state data regime, but the logic of data-driven health economy contradicts the value bases of the welfare state data regime and therefore the justifications for data gathering and use become questionable. We develop the concept of solidarization to describe the process by which individuals are expected to behave in a solidaristic way to support data gathering and related policy processes. We demonstrate the solidarity paradox through a recent legislative and data infrastructure reform in Finland and discuss it in relation to academic literature on solidarity.

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来源期刊
Health
Health Multiple-
CiteScore
4.90
自引率
0.00%
发文量
0
期刊介绍: Health: is published four times per year and attempts in each number to offer a mix of articles that inform or that provoke debate. The readership of the journal is wide and drawn from different disciplines and from workers both inside and outside the health care professions. Widely abstracted, Health: ensures authors an extensive and informed readership for their work. It also seeks to offer authors as short a delay as possible between submission and publication. Most articles are reviewed within 4-6 weeks of submission and those accepted are published within a year of that decision.
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