对以波兰语口语为主要语言的聋人人工耳蜗使用者的生活满意度调查

IF 1.8 3区 医学 Q2 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY
Joanna Kobosko , W.Wiktor Jedrzejczak , Joanna Rostkowska , D.Beata Porembska , Małgorzata Fludra , Henryk Skarżyński
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引用次数: 0

摘要

本研究调查了一组接受过口头教育的语前聋人工耳蜗使用者的生活满意度(SWL)。他们(在儿童、青少年或成人时期)接受过一次或两次公民身份认证,并且能说非常流利的波兰语。这项研究着眼于可能影响SWL的三个因素——心理社会因素、耳聋/听力和沟通相关因素以及社会人口因素。方法研究对象为语言前失聪的CI使用者,他们以波兰语口语为主要语言。他们在主流学校或综合学校(不是聋人学校)接受教育,没有其他残疾或严重疾病。采用生活满意度量表(SWLS)、I-Others问卷、患者健康问卷(PHQ-9)、聋人身份发展量表(DIDS)和奈梅亨人工耳蜗问卷(NCIQ) 5份问卷进行测量。结果该组SWL水平与波兰标准人群相近。SWL与积极的自我感知、接受自己是聋人以及感知CI的好处(通过三个NCIQ领域:自尊、活动限制和社会互动来衡量)呈正相关。另一方面,消极自我知觉、边缘失聪认同和抑郁症状与主观幸福感呈负相关。SWL与手语知识之间没有关系。较低的抑郁症状和较大的听力损失都是SWL的显著预测因子,尽管使用两种ci的患者通常具有较低的SWL。结论低SWL的渐聋CI使用者需要多方面的心理支持,包括聋人身份、自我接纳和抑郁等问题。进一步的研究应涉及不同的DHH CI用户,包括那些波兰语口语能力或手语技能有限的用户,以及波兰聋人社区的成员。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Satisfaction with life in a sample of prelingually deaf cochlear implant users with a good command of spoken Polish as the primary language

Introduction

This study investigated the level of satisfaction with life (SWL) in a group of cochlear implant (CI) users who had been prelingually deaf but were orally educated. They had received one or two CIs (as a child, adolescent, or adult) and were highly competent Polish speakers. This study looked at three factors that may affect SWL – psychosocial, deafness/hearing and communication related, and sociodemographic.

Methods

The participants were prelingually deaf CI users who had learned highly competent spoken Polish as their primary language. They had been educated in mainstream or integrated schools (not schools for the deaf), and had no other disability or severe illness. Measurements were done with 5 questionnaires: the Satisfaction With Life Scale (SWLS), the I–Others Questionnaire, the Patient Health Questionnaire (PHQ-9), the Deaf Identity Development Scale (DIDS), and the Nijmegen Cochlear Implant Questionnaire (NCIQ).

Results

The SWL level of the group was similar to that of the standard Polish population. SWL was positively related to positive self-perception, acceptance of oneself as a deaf person, and to perceiving the benefits of having a CI (as measured by three NCIQ domains: self-esteem, activity limitations, and social interactions). On the other hand, negative self-perception, marginal deaf identity, and depressive symptoms were negatively related to SWL. There was no relationship between SWL and knowledge of sign language. Lower depressive symptoms and greater hearing loss were both significant predictors of SWL, although those who used two CIs generally had a lower SWL.

Conclusions

Prelingually deaf CI users with low SWL require psychological support in many spheres, including working through problems of deaf identity, self-acceptance, and depression. Additional research should involve diverse DHH CI users, including those with limited spoken Polish competency or sign language skills, as well as members of the Polish Deaf community.

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来源期刊
Journal of Communication Disorders
Journal of Communication Disorders AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY-REHABILITATION
CiteScore
3.30
自引率
5.90%
发文量
71
审稿时长
>12 weeks
期刊介绍: The Journal of Communication Disorders publishes original articles on topics related to disorders of speech, language and hearing. Authors are encouraged to submit reports of experimental or descriptive investigations (research articles), review articles, tutorials or discussion papers, or letters to the editor ("short communications"). Please note that we do not accept case studies unless they conform to the principles of single-subject experimental design. Special issues are published periodically on timely and clinically relevant topics.
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