IBD绿洲营地:营地内外参与者的社会情绪健康和保护因素的观察。

IF 1.8 Q3 GASTROENTEROLOGY & HEPATOLOGY
Namita Singh, Steven J Steiner, Rebecca Fauth, Danyel Moosmann, Janis Arnold, Abdul Elkadri, Daniel Marinoni, Laurel Molloy, Becky Johnson Rescola, Jeanne Tung, Elizabeth C Utterson
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引用次数: 0

摘要

背景:Camp Oasis是由克罗恩病和结肠炎基金会主办的,为患有炎症性肠病(IBD)的儿童提供为期一周的年度夏令营。患有IBD的青年面临心理健康挑战的风险增加,绿洲营地可能会减轻这些风险。本研究的目的是测量参加绿洲夏令营后社会情绪幸福感和自我价值感保护因素的变化及其预测因素。方法:在2012年至2019年期间,对参与者及其照顾者进行了一项自愿调查,以反映他们对社会/情感健康以及与慢性病相关的保护因素的看法。t检验比较了夏令营前后参与者和照顾者的感知变化;路径分析检查了社会情感健康的关键预测因素。结果:共分析了6011份在线调查。参与者和照顾者一致报告了参与者在夏令营期间和之后的经历的积极看法。在自信、独立性、活动、与他人相处时的舒适感、对疾病更开放以及按预期服药方面,观察到显著的改善。作为绿洲营地的新成员是营地后疾病相关自我效能和社会联系的最强预测因素之一。结论:训练营期间参与者一致的高感知率表明训练营是一个改变IBD青年患者生活的经历,减少疾病相关的耻辱感,增强信心和社交技能。夏令营结束后,参与者的积极经历似乎在开放性、归属感、联系感和自信心方面带来了显著的好处。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

IBD Camp Oasis: A look at Participants' Social-Emotional Well-Being and Protective Factors During Camp and Beyond.

IBD Camp Oasis: A look at Participants' Social-Emotional Well-Being and Protective Factors During Camp and Beyond.

IBD Camp Oasis: A look at Participants' Social-Emotional Well-Being and Protective Factors During Camp and Beyond.

IBD Camp Oasis: A look at Participants' Social-Emotional Well-Being and Protective Factors During Camp and Beyond.

Background: Camp Oasis is an annual week-long camp serving children with inflammatory bowel disease (IBD) and hosted by the Crohn's and Colitis Foundation. Youth with IBD are at increased risk for mental health challenges, with Camp Oasis potentially mitigating these risks. The aim of this study is to measure change in and predictors of social-emotional well-being and protective factors of self-worth as a result of attending Camp Oasis.

Methods: Between 2012 and 2019, a voluntary survey was administered to participants and their caregivers to reflect on their perceptions of social/emotional well-being and protective factors related to chronic disease. T-tests compared change in participants' and caregivers' perceptions before and after camp; path analyses examined the key predictors of social-emotional well-being.

Results: A total of 6011 online surveys were analyzed. Participants and caregivers reported consistently positive perceptions of participants' experiences during and after camp. Significant improvements in confidence, independence, activity, comfort around others, being more open about disease, and taking medication as expected were observed. Being new to Camp Oasis was one of the strongest predictors of both disease-related self-efficacy and social connections after camp.

Conclusions: The uniformly high rates of participants' perceptions during camp suggest camp is a life-changing experience for youth with IBD, reduces disease-related stigma, and enhances confidence and social skills. Participants' positive experiences appear to foster notable benefits after camp in terms of openness, their sense of belonging, connections, and confidence.

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来源期刊
Crohn's & Colitis 360
Crohn's & Colitis 360 Medicine-Gastroenterology
CiteScore
2.50
自引率
0.00%
发文量
41
审稿时长
12 weeks
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