Ivana Bozovic Spasojevic, Andrea Ferrari, Johan De Munter, Ashley Gamble, Assia Konsoulova-Kirova, Katie Rizvi, Carina Schneider, Marie Balsat, Anna Castleton, Leila Gofti-Laroche, Anita Kienesberger, Beate Timmermann, Josef Vormoor, Emmanouil Saloustros, Daniel P Stark
{"title":"我们在照顾患有癌症的青少年和年轻人方面取得进展了吗?欧洲多专业调查的结果。","authors":"Ivana Bozovic Spasojevic, Andrea Ferrari, Johan De Munter, Ashley Gamble, Assia Konsoulova-Kirova, Katie Rizvi, Carina Schneider, Marie Balsat, Anna Castleton, Leila Gofti-Laroche, Anita Kienesberger, Beate Timmermann, Josef Vormoor, Emmanouil Saloustros, Daniel P Stark","doi":"10.1177/03008916231183477","DOIUrl":null,"url":null,"abstract":"<p><strong>Background: </strong>It is well documented that traditional health care models do not meet the specific needs of Adolescents and Young Adults (AYA) cancer patients.</p><p><strong>Methods: </strong>We explore a map of the development of age-specific AYA cancer care across Europe, from the perspective of healthcare professionals with an interest in AYA care, in order to understand the specific challenges and map progress over time. An on-line survey was developed by international professional cancer organisations.</p><p><strong>Results: </strong>We had 377 respondents from 60 countries. The majority of respondents were physicians 298 (79%), a minority of survey respondents (39, 10.4%) work exclusively with AYA patients, most respondents declared substantial and routine clinical service collaborations to provide care and treatment to AYA with cancer. Policy for the multidisciplinary management of AYA cancer patients commonly appears in Europe now, and was reported by 234 (78.52%) respondents. Specific professional training for AYA cancer care is not uniformly available.</p><p><strong>Conclusion: </strong>There is considerable opportunity for many organisations to work together in raising the profile of AYA cancer related issues, in providing education and in encouraging research and collaboration.</p>","PeriodicalId":23349,"journal":{"name":"Tumori","volume":" ","pages":"546-554"},"PeriodicalIF":2.0000,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"1","resultStr":"{\"title\":\"Have we made progress in taking care of adolescents and young adults with cancer? Results of a European multi-professional survey.\",\"authors\":\"Ivana Bozovic Spasojevic, Andrea Ferrari, Johan De Munter, Ashley Gamble, Assia Konsoulova-Kirova, Katie Rizvi, Carina Schneider, Marie Balsat, Anna Castleton, Leila Gofti-Laroche, Anita Kienesberger, Beate Timmermann, Josef Vormoor, Emmanouil Saloustros, Daniel P Stark\",\"doi\":\"10.1177/03008916231183477\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Background: </strong>It is well documented that traditional health care models do not meet the specific needs of Adolescents and Young Adults (AYA) cancer patients.</p><p><strong>Methods: </strong>We explore a map of the development of age-specific AYA cancer care across Europe, from the perspective of healthcare professionals with an interest in AYA care, in order to understand the specific challenges and map progress over time. An on-line survey was developed by international professional cancer organisations.</p><p><strong>Results: </strong>We had 377 respondents from 60 countries. The majority of respondents were physicians 298 (79%), a minority of survey respondents (39, 10.4%) work exclusively with AYA patients, most respondents declared substantial and routine clinical service collaborations to provide care and treatment to AYA with cancer. Policy for the multidisciplinary management of AYA cancer patients commonly appears in Europe now, and was reported by 234 (78.52%) respondents. Specific professional training for AYA cancer care is not uniformly available.</p><p><strong>Conclusion: </strong>There is considerable opportunity for many organisations to work together in raising the profile of AYA cancer related issues, in providing education and in encouraging research and collaboration.</p>\",\"PeriodicalId\":23349,\"journal\":{\"name\":\"Tumori\",\"volume\":\" \",\"pages\":\"546-554\"},\"PeriodicalIF\":2.0000,\"publicationDate\":\"2023-12-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"1\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Tumori\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1177/03008916231183477\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2023/7/24 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"Q3\",\"JCRName\":\"ONCOLOGY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Tumori","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1177/03008916231183477","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2023/7/24 0:00:00","PubModel":"Epub","JCR":"Q3","JCRName":"ONCOLOGY","Score":null,"Total":0}
Have we made progress in taking care of adolescents and young adults with cancer? Results of a European multi-professional survey.
Background: It is well documented that traditional health care models do not meet the specific needs of Adolescents and Young Adults (AYA) cancer patients.
Methods: We explore a map of the development of age-specific AYA cancer care across Europe, from the perspective of healthcare professionals with an interest in AYA care, in order to understand the specific challenges and map progress over time. An on-line survey was developed by international professional cancer organisations.
Results: We had 377 respondents from 60 countries. The majority of respondents were physicians 298 (79%), a minority of survey respondents (39, 10.4%) work exclusively with AYA patients, most respondents declared substantial and routine clinical service collaborations to provide care and treatment to AYA with cancer. Policy for the multidisciplinary management of AYA cancer patients commonly appears in Europe now, and was reported by 234 (78.52%) respondents. Specific professional training for AYA cancer care is not uniformly available.
Conclusion: There is considerable opportunity for many organisations to work together in raising the profile of AYA cancer related issues, in providing education and in encouraging research and collaboration.
期刊介绍:
Tumori Journal covers all aspects of cancer science and clinical practice with a strong focus on prevention, translational medicine and clinically relevant reports. We invite the publication of randomized trials and reports on large, consecutive patient series that investigate the real impact of new techniques, drugs and devices inday-to-day clinical practice.