人人都在谈论公平,但真的有人在听吗?在卫生系统中更好地以数据为导向进行学习。

IF 1.6 Q3 HEALTH CARE SCIENCES & SERVICES
International Journal of Population Data Science Pub Date : 2023-02-22 eCollection Date: 2023-01-01 DOI:10.23889/ijpds.v5i4.2125
Nakia K Lee-Foon, Robert J Reid
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引用次数: 0

摘要

几十年来,数据收集、分析和数据驱动的行动周期一直被视为医疗保健的重要组成部分。在 COVID-19 大流行期间,各级政府和医疗机构一直在使用病例发生率和死亡率数据,为大流行战略和服务分配提供依据。然而,这些应对措施往往是不公平的,凸显了边缘化人群所面临的原有医疗差距。这促使各国政府最终正视这些差距,并想方设法迅速提供更公平的大流行病支持。这些快速的数据支持证明,学习型医疗系统(LHS)可以被迅速动员起来,并有效地用于制定医疗保健行动,以公平、可负担的方式提供符合不同人群需求的医疗保健干预措施。在学习型保健系统中,数据被视为研究人员可用于指导实践和后续研究的起点。尽管采用了这一创新方法,但在整个医疗保健领域,数据收集和可靠分析的质量和深度各不相同,在四重目标方面缺乏数据。通常情况下,在社区社会人口统计、患者对医疗质量的看法以及健康的社会决定因素等方面存在巨大的数据缺口。这妨碍了人们对医疗保健状况的深入了解,使边缘化人群未被计算在内,处于改进工作的边缘。研究人员通常将这些差距视为需要更多数据的迹象,而不是批判性分析和迭代学习多种已有数据来源的机会。这种持续的数据收集和分析循环让人不禁怀疑,医疗保健究竟是存在数据问题还是学习问题。在这篇评论中,我们将讨论医疗保健数据的使用方式,以及 LHS 如何打破这种循环,将数据转化为学习机会,为医疗保健实践和未来研究提供实时信息。最后,我们提出了几种方法,使从数据中学习与数据本身同等重要。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Everybody's talking about equity, but is anyone really listening?: The case for better data-driven learning in health systems.

Data collection, analysis, and data driven action cycles have been viewed as vital components of healthcare for decades. Throughout the COVID-19 pandemic, case incidence and mortality data have consistently been used by various levels of governments and health institutions to inform pandemic strategies and service distribution. However, these responses are often inequitable, underscoring pre-existing healthcare disparities faced by marginalized populations. This has prompted governments to finally face these disparities and find ways to quickly deliver more equitable pandemic support. These rapid data informed supports proved that learning health systems (LHS) could be quickly mobilized and effectively used to develop healthcare actions that delivered healthcare interventions that matched diverse populations' needs in equitable and affordable ways. Within LHS, data are viewed as a starting point researchers can use to inform practice and subsequent research. Despite this innovative approach, the quality and depth of data collection and robust analyses varies throughout healthcare, with data lacking across the quadruple aims. Often, large data gaps pertaining to community socio-demographics, patient perceptions of healthcare quality and the social determinants of health exist. This prevents a robust understanding of the healthcare landscape, leaving marginalized populations uncounted and at the sidelines of improvement efforts. These gaps are often viewed by researchers as indication that more data is needed rather than an opportunity to critically analyze and iteratively learn from multiple sources of pre-existing data. This continued cycle of data collection and analysis leaves one to wonder if healthcare has a data problem or a learning problem. In this commentary, we discuss ways healthcare data are often used and how LHS disrupts this cycle, turning data into learning opportunities that inform healthcare practice and future research in real time. We conclude by proposing several ways to make learning from data just as important as the data itself.

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来源期刊
CiteScore
2.50
自引率
0.00%
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386
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