Silvia Pizzighello, Alberto Raggi, Marinela Vavla, Marianna Uliana, Alda Pellegri, Michela Martinuzzi, Andrea Martinuzzi
{"title":"脑性瘫痪的残疾感知:使用WHODAS 2.0的横断面研究。","authors":"Silvia Pizzighello, Alberto Raggi, Marinela Vavla, Marianna Uliana, Alda Pellegri, Michela Martinuzzi, Andrea Martinuzzi","doi":"10.1080/17518423.2023.2232002","DOIUrl":null,"url":null,"abstract":"<p><p>This observational study aims to describe the level of perceived disability in Cerebral Palsy (CP). We described the perception of adults by using the interviewer-administered version of the WHO disability assessment schedule (WHODAS 2.0). In case of intellectual disability (ID), the proxy-administered version was used, and a caregiver was asked to report the difficulties experienced by the patient; 199 patients were enrolled. The level of perceived disability was higher when referred to patients with ID (proxy report) than when referred to patients without ID (<i>p</i> < .001). For all patients, the level of perceived disability varied depending on the severity and the localization of motor impairment (both <i>p</i> < .001). No differences were observed based on the type of motor impairment. The perceived disability was correlated with age only for patients with no ID (<i>p</i> < .05). The WHODAS 2.0 may be a useful tool to explore the perception of disability in CP.</p>","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":null,"pages":null},"PeriodicalIF":1.1000,"publicationDate":"2023-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"The perception of disability in cerebral palsy: a cross-sectional study using the WHODAS 2.0.\",\"authors\":\"Silvia Pizzighello, Alberto Raggi, Marinela Vavla, Marianna Uliana, Alda Pellegri, Michela Martinuzzi, Andrea Martinuzzi\",\"doi\":\"10.1080/17518423.2023.2232002\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>This observational study aims to describe the level of perceived disability in Cerebral Palsy (CP). We described the perception of adults by using the interviewer-administered version of the WHO disability assessment schedule (WHODAS 2.0). In case of intellectual disability (ID), the proxy-administered version was used, and a caregiver was asked to report the difficulties experienced by the patient; 199 patients were enrolled. The level of perceived disability was higher when referred to patients with ID (proxy report) than when referred to patients without ID (<i>p</i> < .001). For all patients, the level of perceived disability varied depending on the severity and the localization of motor impairment (both <i>p</i> < .001). No differences were observed based on the type of motor impairment. The perceived disability was correlated with age only for patients with no ID (<i>p</i> < .05). The WHODAS 2.0 may be a useful tool to explore the perception of disability in CP.</p>\",\"PeriodicalId\":51227,\"journal\":{\"name\":\"Developmental Neurorehabilitation\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":1.1000,\"publicationDate\":\"2023-07-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Developmental Neurorehabilitation\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1080/17518423.2023.2232002\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q4\",\"JCRName\":\"CLINICAL NEUROLOGY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Developmental Neurorehabilitation","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1080/17518423.2023.2232002","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q4","JCRName":"CLINICAL NEUROLOGY","Score":null,"Total":0}
The perception of disability in cerebral palsy: a cross-sectional study using the WHODAS 2.0.
This observational study aims to describe the level of perceived disability in Cerebral Palsy (CP). We described the perception of adults by using the interviewer-administered version of the WHO disability assessment schedule (WHODAS 2.0). In case of intellectual disability (ID), the proxy-administered version was used, and a caregiver was asked to report the difficulties experienced by the patient; 199 patients were enrolled. The level of perceived disability was higher when referred to patients with ID (proxy report) than when referred to patients without ID (p < .001). For all patients, the level of perceived disability varied depending on the severity and the localization of motor impairment (both p < .001). No differences were observed based on the type of motor impairment. The perceived disability was correlated with age only for patients with no ID (p < .05). The WHODAS 2.0 may be a useful tool to explore the perception of disability in CP.
期刊介绍：
Developmental Neurorehabilitation aims to enhance recovery, rehabilitation and education of people with brain injury, neurological disorders, and other developmental, physical and intellectual disabilities. Although there is an emphasis on childhood, developmental disability can be considered from a lifespan perspective. This perspective acknowledges that development occurs throughout a person’s life and thus a range of impairments or diseases can cause a disability that can affect development at any stage of life.
求助内容：
应助结果提醒方式：
京公网安备 11010802042870号
