绘制二十年的儿童唐氏综合症研究文献。

Q3 Medicine
Ulster Medical Journal Pub Date : 2023-05-01
Caoimhe McKenna, Anne Schilder, Rachel Xue Ning Lee, Logan Manikam, Roderick Venekamp, Monica Lakhanpaul
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引用次数: 0

摘要

背景:虽然研究在唐氏综合症儿童的健康和预期寿命方面取得了重大进展,但仍然存在重大的疾病负担和健康不平等。为了解决这一问题,必须进一步研究,重点放在最需要的领域。了解已经开展的研究以及任何存在的差距,有助于指导未来的学术努力。方法:我们采用认识论的方法来总结二十年的儿科DS文献。出版物按原产国、方法、初级保健主题和次级研究主题分类。结果:在5800份儿科DS出版物中,我们发现2000年至2014年间,该领域的出版物数量普遍增加,此后呈下降趋势。大多数出版物都隶属于设在西方国家的机构。大多数研究采用横断面方法(33.3%),而相对较少的是干预性研究(5.6%)、定性研究(2.7%)或混合方法研究(1.6%)。大多数出版物集中于发育与认知(13.1%)、神经病学(9.9%)和肿瘤学(9.8%),较少关注泌尿生殖健康(0.9%)、生长(0.9%)、死亡率(0.9%)和儿童保护(0.2%)。结论:这些发现突出了儿科DS文献中相对缺乏的领域,这可能需要更多的学术关注。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

Mapping Two Decades of Paediatric Down Syndrome Research Literature.

Mapping Two Decades of Paediatric Down Syndrome Research Literature.

Mapping Two Decades of Paediatric Down Syndrome Research Literature.

Mapping Two Decades of Paediatric Down Syndrome Research Literature.

Background: While research has led to significant advancements in the health and life expectancy of children with Down Syndrome (DS), there remains a significant burden of disease and health inequity. Further research, focused on areas of greatest need, is imperative to address this. An understanding of what research has been undertaken, and any existing gaps, helps to guide future academic efforts.

Methods: We utilised an epistemological approach to summarise two decades of paediatric DS literature. Publications were categorised according to the country of origin, methodology, primary health themes and subcategory research themes.

Results: Across 5,800 paediatric DS publications we demonstrate a general increase in the number of publications in this field between 2000 and 2014, with a trending decline thereafter. The majority of publications were affiliated with Institutions based in Western countries. The majority of studies utilised a cross-sectional methodology (33.3%), while relatively few were interventional (5.6%), qualitative (2.7%) or mixed-method studies (1.6%). Most publications focused on development & cognition (13.1%), neurology (9.9%) and oncology (9.8%), with fewer focusing on genitourinary health (0.9%), growth (0.9%), mortality (0.9%) and child protection (0.2%).

Conclusion: These findings highlight areas of relative paucity within the paediatric DS literature which may warrant increased academic attention.

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来源期刊
Ulster Medical Journal
Ulster Medical Journal Medicine-Medicine (all)
CiteScore
1.00
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46
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