M Elise Radina, Deonni P Stolldorf, Vaughn G Sinclair, Mary S Dietrich, Melissa A Adair, Terrah Akard, Sheila Ridner
{"title":"Development and preliminary validation of a health-related family quality of life instrument.","authors":"M Elise Radina, Deonni P Stolldorf, Vaughn G Sinclair, Mary S Dietrich, Melissa A Adair, Terrah Akard, Sheila Ridner","doi":"10.1080/07399332.2023.2190984","DOIUrl":null,"url":null,"abstract":"<p><p>The researchers' aims for this preliminary study was to develop an instrument, guided by the Theory of Health-related Family Quality of Life, to measure health-related family quality of life (HR-FQoL) as perceived by women with cancer. The researchers used a two phase design for instrument development: (1) establishing face validity of a 38-item instrument with an expert panel and patient review, and (2) focusing on the internal structure and construct validity of the instrument with responses from female patients (<i>N</i> = 236) with a cancer diagnosis (breast, gynecologic). The researchers identified a final 25-item HR-FQoL instrument with four sub-scales that each captured multiple concepts within the Theory of HR-FQoL. The resulting instrument maybe used by researchers and clinicians to assess various aspects of health-related family quality of life among female breast and gynecological cancer survivors.</p>","PeriodicalId":47836,"journal":{"name":"Health Care for Women International","volume":" ","pages":"657-677"},"PeriodicalIF":1.2000,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Health Care for Women International","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1080/07399332.2023.2190984","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2023/4/19 0:00:00","PubModel":"Epub","JCR":"Q4","JCRName":"PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH","Score":null,"Total":0}
引用次数: 0
Abstract
The researchers' aims for this preliminary study was to develop an instrument, guided by the Theory of Health-related Family Quality of Life, to measure health-related family quality of life (HR-FQoL) as perceived by women with cancer. The researchers used a two phase design for instrument development: (1) establishing face validity of a 38-item instrument with an expert panel and patient review, and (2) focusing on the internal structure and construct validity of the instrument with responses from female patients (N = 236) with a cancer diagnosis (breast, gynecologic). The researchers identified a final 25-item HR-FQoL instrument with four sub-scales that each captured multiple concepts within the Theory of HR-FQoL. The resulting instrument maybe used by researchers and clinicians to assess various aspects of health-related family quality of life among female breast and gynecological cancer survivors.
期刊介绍:
Health Care for Women International is a critically acclaimed, international publication that provides a unique interdisciplinary approach to health care and related topics that concern women around the globe. Published twelve times a year, Health Care for Women International includes the newest research, theories, and issues in the fields of public health, social science, health care practice, and health care policy. Scholars and practitioners address topics such as cultural differences, alternative lifestyles, domestic violence, public health issues associated with the aging of the population, maternal morbidity and mortality, infectious diseases, and a host of other gender-based ethical issues. The editor also encourages discussion topics, inviting readers to comment on articles that focus on specific aspects of health issue for women.