Needs Assessment of Self-Management for Individuals With Chronic Spinal Cord Injury/Disease.

IF 1.5 4区医学 Q3 REHABILITATION

Otjr-Occupation Participation and Health Pub Date : 2024-01-01 Epub Date: 2023-07-12 DOI:10.1177/15394492231183627

Bridget Kraus, Timothy J Wolf

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Abstract

Since the 1980s, survivorship for persons with spinal cord injury/disease (SCI/D) has significantly improved; however, life expectancy remains lower than the general population due to secondary health conditions (SHCs) that lead to decreased function and death. This study explored (1) facilitators and barriers to engaging in self-management (SM) for persons with SCI/D and (2) stakeholder perspectives on potential SM program components and content for intervention development. Around 38 participants with SCI/D responded to this cross-sectional study and needs assessment conducted at the University of Missouri, Columbia. Responses were analyzed to determine descriptive statistics. Participants indicated barriers to SM include transportation/distance, presence of SHCs, and a lack of local resources. Participants noted that virtual SM programs with strong psychological health/coping components were preferred. These findings should guide the development of an SM program tailored to SCI/D to reduce the prevalence and impact of SHC on the SCI/D population.

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慢性脊髓损伤/疾病患者自我管理需求评估

自20世纪80年代以来，脊髓损伤/疾病(SCI/D)患者的存活率显著提高;然而，由于继发性健康状况(SHCs)导致功能下降和死亡，预期寿命仍然低于一般人口。本研究探讨了(1)SCI/D患者参与自我管理(SM)的促进因素和障碍;(2)利益相关者对潜在的SM项目组成部分和干预发展内容的看法。大约38名SCI/D患者对哥伦比亚密苏里大学进行的横断面研究和需求评估做出了回应。对反应进行分析以确定描述性统计。与会者指出，SM的障碍包括交通/距离、SHCs的存在以及缺乏当地资源。与会者指出，具有较强心理健康/应对成分的虚拟SM程序更受欢迎。这些发现应该指导针对SCI/D量身定制的SM计划的发展，以减少SHC对SCI/D人群的患病率和影响。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Otjr-Occupation Participation and Health REHABILITATION-

CiteScore

2.60

自引率

7.10%

发文量

期刊介绍： The aim of OTJR: Occupation, Participation and Health is to advance knowledge and science in occupational therapy and related fields, nationally and internationally, through the publication of scholarly literature and research. The journal publishes research that advances the understanding of occupation as it relates to participation and health.