Development of the Functional Assessment of Chronic Illness Therapy - Liver Transplant (FACT-LT) Scale.

IF 0.3 Q4 TRANSPLANTATION
L Gangeri, S Alfieri, M Scrignaro, C Brunellia, E Bianchi, M Bosisio, P Zoncheddu, F Ferri, G Biffa, E Parks-Vernizzi, J Bredle, C Borreani
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引用次数: 0

Abstract

Background: This study aims to propose an initial development of the FACT-Liver Transplant (FACT-LT) scale to assess the major physical and emotional concerns of patients before and after Orthotopic Liver transplant (OLT) due to acute and chronic liver failure and hepatocellular carcinoma.

Methods: The FACT-LT was developed in two phases. In Phase I, items were generated: 1) through interviews with 10 OLT experts and 15 candidates for or recipients of both oncological and non-oncological OLT which identified relevant topics; 2) from the FACIT item bank. In Phase II, a questionnaire to assess item frequency, applicability, and comprehension was administered to 20 OLT experts and, to assess item difficulty, embarrassment and content irrelevance, to 30 transplant recipients or candidate patients (15 oncological, 15 non-oncological).

Results: In Phase I, 44 items were formulated/reviewed, and 30 items were maintained. All the healthcare professionals interviewed rejected the recommendation to develop two different modules for cancer and non-cancer patients. In Phase II, the majority of the experts and patients expressed an overall satisfaction with the questionnaire, indicating that the items were relevant, comprehensible and not embarrassing (range 75% - 99%). The first version of the FACT-LT includes 28 items defining four QOL domains: 5 items relating to Physical Well-Being, 8 to Functional Well-Being, 13 to Emotional Well-Being, and 2 to Social/Family Well-Being.

Conclusion: The preliminary results obtained were promising; however further studies are needed, in order to proceed with a FACT-LT validation process.

开发慢性病治疗功能评估--肝移植(FACT-LT)量表。
研究背景本研究旨在初步开发 FACT-Liver Transplant(FACT-LT)量表,以评估因急性和慢性肝功能衰竭及肝细胞癌而进行正位肝移植(OLT)前后患者的主要生理和情绪问题:FACT-LT 分两个阶段开发。方法:FACT-LT 分两个阶段开发:1)通过与 10 名 OLT 专家和 15 名肿瘤和非肿瘤 OLT 候选者或受者进行访谈,确定相关主题;2)从 FACIT 项目库中获取项目。在第二阶段,对 20 名有形器官移植专家进行了问卷调查,以评估项目频率、适用性和理解能力;对 30 名移植受者或候选患者(15 名肿瘤患者,15 名非肿瘤患者)进行了问卷调查,以评估项目难度、尴尬程度和内容无关性:结果:在第一阶段,制定/审查了 44 个项目,保留了 30 个项目。所有接受访谈的医护专业人员都反对为癌症和非癌症患者开发两个不同模块的建议。在第二阶段,大多数专家和患者对问卷总体表示满意,认为问卷项目贴切、易懂且不令人尴尬(75% - 99%)。第一版 FACT-LT 包括 28 个项目,定义了四个 QOL 领域:5个项目与身体健康有关,8个项目与功能健康有关,13个项目与情感健康有关,2个项目与社会/家庭健康有关:获得的初步结果很有希望,但还需要进一步研究,以便继续进行 FACT-LT 验证过程。
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来源期刊
CiteScore
1.60
自引率
0.00%
发文量
0
审稿时长
12 weeks
期刊介绍: The International Journal of Organ Transplantation Medicine (IJOTM) is a quarterly peer-reviewed English-language journal that publishes high-quality basic sciences and clinical research on transplantation. The scope of the journal includes organ and tissue donation, procurement and preservation; surgical techniques, innovations, and novelties in all aspects of transplantation; genomics and immunobiology; immunosuppressive drugs and pharmacology relevant to transplantation; graft survival and prevention of graft dysfunction and failure; clinical trials and population analyses in the field of transplantation; transplant complications; cell and tissue transplantation; infection; post-transplant malignancies; sociological and ethical issues and xenotransplantation.
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