'My body is out to wreck everything I have': a qualitative study of how women with endometriosis feel about their bodies.

IF 2.4 3区心理学 Q2 PSYCHOLOGY, MULTIDISCIPLINARY

Psychology & Health Pub Date : 2025-02-01 Epub Date: 2023-05-29 DOI:10.1080/08870446.2023.2218404

Jacqueline Mills, ChellChih Shu, RoseAnne Misajon, Georgia Rush-Privitera

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Abstract

Objective: There is a distinct lack of research regarding the relationship with the body in women with endometriosis, despite the condition involving significant changes to appearance and impaired bodily functionality. The current study aimed to understand how women with endometriosis feel about their body.

Methods and measures: Participants completed an online survey with open-ended questions on how they feel about their body, physical appearance, and level of daily functioning.

Results: Responses from 315 women with endometriosis were analysed using reflexive thematic analysis, generating three themes: 1) 'It makes me feel broken and inadequate' (Sense of being defective); 2) 'I feel like I'm in a war with it' (Sense of conflict); and 3) 'I feel like my body isn't mine; it's out of control' (Sense of alienation).

Conclusion: The findings provide support for the notion that the relationship between the body and sense of self is particularly problematic for women with endometriosis and warrants therapeutic intervention. Future research should verify the efficacy of appreciation and self-compassion-based interventions for people with endometriosis.

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“我的身体要毁掉我所拥有的一切”：一项关于子宫内膜异位症女性如何看待自己身体的定性研究。

目的：尽管子宫内膜异位症患者的外观和身体功能发生了显著变化，但关于子宫内膜异位症患者与身体的关系的研究明显缺乏。目前的研究旨在了解患有子宫内膜异位症的女性如何看待自己的身体。方法和措施：参与者完成了一份关于他们对自己的身体、外表和日常功能水平的感觉的开放式在线调查。结果：对315例子宫内膜异位症患者的反应进行了反身性主题分析，得出三个主题：1)“这让我感到破碎和不足”(有缺陷的感觉);2） “我觉得我在和它打仗”（冲突感）；和3)“我觉得我的身体不属于我；失控了”（疏离感）。结论：研究结果支持了身体和自我意识之间的关系对子宫内膜异位症女性来说是特别有问题的，需要治疗干预。未来的研究应该验证欣赏和自我同情为基础的干预措施对子宫内膜异位症患者的疗效。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Psychology & Health Multiple-

CiteScore

7.30

自引率

3.00%

发文量

期刊介绍： Psychology & Health promotes the study and application of psychological approaches to health and illness. The contents include work on psychological aspects of physical illness, treatment processes and recovery; psychosocial factors in the aetiology of physical illnesses; health attitudes and behaviour, including prevention; the individual-health care system interface particularly communication and psychologically-based interventions. The journal publishes original research, and accepts not only papers describing rigorous empirical work, including meta-analyses, but also those outlining new psychological approaches and interventions in health-related fields.