"It Seems Like a Bad Thing": US South Asian Youths' Perspectives About the Use of Hospice Care.

IF 1.5 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES
Nidhi Khosla
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引用次数: 0

Abstract

Background: South Asians are one of the fastest growing populations in the US. Family based decision making is common among this population. Little is known about their knowledge and attitudes towards hospice use.

Objective: This study explored US South Asian youths' knowledge of, and attitudes towards hospice care.

Design: Qualitative study, using focus group discussions.

Methods: Thirty-six university students of South Asian heritage participated in ten focus group discussions. Data were coded inductively and deductively. Thematic analysis was performed. Disagreements were resolved through discussion.

Results: Participants were in consensus that if patients had an incurable, fatal condition, keeping them comfortable was important. Several participants were unaware of the terms 'hospice' and 'palliative care'. After these terms were explained, most opposed hospice care for reasons of 'desire for a normal life', 'cultural incompatibility', 'concerns about the hospice environment' and 'preference for home as the place of death'. Some were opposed to even home hospice fearing that it would continuously remind the family and patient about impending death. Concerns were also expressed about having a 'stranger' in the home to provide hospice care. One participant said she would support hospice use if it aligned with the patient's values. Others cited financial reasons and quality of life as considerations in choosing hospice care.

Conclusions: Research is needed on culturally-appropriate modes of palliative care education and advocacy for South Asian populations in the US, especially youth, that are often the decision makers for the care of older family members.

"这似乎是件坏事":美国南亚青年对使用临终关怀的看法》。
背景:南亚人是美国增长最快的人口之一。基于家庭的决策在这一人群中很常见。人们对他们使用安宁疗护的知识和态度知之甚少:本研究探讨了美国南亚青年对临终关怀的了解和态度:设计:定性研究,采用焦点小组讨论:36名南亚裔大学生参加了10场焦点小组讨论。对数据进行了归纳和演绎编码。进行专题分析。通过讨论解决分歧:结果:与会者一致认为,如果病人患有无法治愈的致命疾病,让他们保持舒适是非常重要的。一些参与者不知道 "临终关怀 "和 "姑息关怀 "这两个术语。在解释了这些术语后,大多数人反对临终关怀,理由是 "渴望正常的生活"、"文化不相容"、"对临终关怀环境的担忧 "以及 "倾向于在家作为死亡地点"。有些人甚至反对家庭临终关怀,担心它会不断提醒家人和病人死亡即将来临。还有人对让一个 "陌生人 "在家中提供临终关怀服务表示担忧。一位与会者说,如果安宁疗护符合病人的价值观,她会支持使用安宁疗护。其他人则将经济原因和生活质量作为选择安宁疗护的考虑因素:美国的南亚人群,尤其是年轻人,往往是照顾老年家庭成员的决策者,因此需要研究适合他们文化的姑息关怀教育和宣传模式。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
American Journal of Hospice & Palliative Medicine
American Journal of Hospice & Palliative Medicine HEALTH CARE SCIENCES & SERVICES-
CiteScore
3.80
自引率
5.30%
发文量
169
审稿时长
6-12 weeks
期刊介绍: American Journal of Hospice & Palliative Medicine (AJHPM) is a peer-reviewed journal, published eight times a year. In 30 years of publication, AJHPM has highlighted the interdisciplinary team approach to hospice and palliative medicine as related to the care of the patient and family. This journal is a member of the Committee on Publication Ethics (COPE).
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