Personal and Perceived Depression Stigma in Individuals Affected by Depression and Relatives: Results of a Survey among Attendees of a German Depression Congress

Heinz I, Mergl R, A. K, Hegerl U, Rummel-Kluge C
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Abstract

Background: Depression stigma is a clinically relevant factor negatively affecting the help-seeking process and depression care. Relatives of individuals suffering from depression play an important role in service utilization and in depression treatment, but little is known about their depression stigma compared to the stigma of individuals affected. Aims: We investigated whether individuals with depression, relatives and individuals being both - affected and relative - differ in depression stigma. Methods: Paper-pencil questionnaire data of 216 study participants from a German depression congress in 2017 were analyzed using Kruskal-Wallis tests to investigate subgroup differences and Mann-Whitney-U tests for post-hoc comparisons. Ordinal logistic generalized regression models with the dependent variables being the stigma sum scores and the independent variables “group”, “gender” and “age” were computed. Results: Participants being a relative of an individual with depression, being affected by depression or being both - relative and affected - reported comparable personal and perceived depression stigma. There was a statistical trend for group differences in personal stigma in the total sample, due to significantly lower personal stigma in male participants being affected by depression compared to male participants having a family member affected. Conclusions: Relatives of individuals with depression appear to have similar stigmatizing attitudes as affected individuals themselves. Potential differences in personal stigma in male relatives compared to male patients require further research, since they have implications for anti-stigma activities as well as for depression care.
受抑郁症影响的个体及其亲属的个人和感知抑郁耻辱感:德国抑郁症大会参会者的调查结果
背景:抑郁症耻辱感是影响抑郁症求助过程和治疗的临床相关因素。抑郁症患者的亲属在服务利用和抑郁症治疗中发挥着重要作用,但与抑郁症患者的耻辱感相比,他们的抑郁症耻辱感知之甚少。目的:我们调查抑郁症患者、亲属和既受影响又受亲属影响的个体在抑郁症病耻感上是否存在差异。方法:对2017年德国抑郁症大会上216名研究参与者的纸笔问卷数据进行分析,采用Kruskal-Wallis检验调查亚组差异,Mann-Whitney-U检验进行事后比较。以病耻感和得分为因变量,自变量为“群体”、“性别”和“年龄”,计算有序logistic广义回归模型。结果:参与者是抑郁症患者的亲属,受到抑郁症的影响,或两者都是亲属和受影响的,报告了可比较的个人和感知的抑郁症耻辱感。总体样本中个人耻辱感的组间差异有统计学趋势,这是由于受抑郁症影响的男性参与者的个人耻辱感明显低于有家庭成员受抑郁症影响的男性参与者。结论:抑郁症患者的亲属似乎与患者本身有着相似的污名化态度。与男性患者相比,男性亲属在个人耻辱感方面的潜在差异需要进一步研究,因为它们对抗耻辱感活动和抑郁症护理都有影响。
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