2020 Annual Demographic Survey of Parkinson’s Disease and Movement Disorder Nurse Specialists

Abstract

In Australia, it is estimated that 80,000 people are living with Parkinson’s disease (Rossiter et al., 2019). The median time from disease onset to death is approximately 12.4 years, with many living with the disease for over 20 years (Deloitte, 2015). A significant proportion of people living with Parkinson’s disease suffer from disabilities that require long term care (Williams et al., 2017) with an estimated average lifetime financial cost of $161,300 per patient over the 12 years. In 2018, the estimated total economic cost was $12.3 billion (Deloitte, 2015).