How Did Patients Living With Immune-Mediated Rheumatic Diseases Face the Beginning of the COVID-19 Pandemic in Brazil? Results of the COnVIDa Study.

IF 0.4 3区 哲学 Q1 HISTORY
Agricultural History Pub Date : 2024-01-01 Epub Date: 2022-06-14 DOI:10.1097/RHU.0000000000001882
Alisson Pugliesi, Zoraida Sachetto, Marcelo de Medeiros Pinheiro, Gecilmara Salviato Pileggi, Gustavo Sarot Pereira da Cunha, Faissal Nemer Hajar, Maria Luiza Marques Negrisolli Cunha, Licia Maria Henrique da Mota, Claudia Diniz Lopes Marques, Adriana Maria Kakehasi, Wanda Heloísa Rodrigues Ferreira, Nafice Costa Araújo, Ana Paula Monteiro Gomides Reis, Rejane Maria Rodrigues de Abreu Vieira, Gilda Aparecida Ferreira, Adriana Danowski, Viviane Angelina de Souza, Danielle Christinne Soares Egypto de Brito, Eduardo Dos Santos Paiva, José Roberto Provenza, Valderílio Feijó Azevedo
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引用次数: 0

Abstract

Background: The coronavirus disease 2019 (COVID-19) pandemic has brought additional burden to patients living with immune-mediated rheumatic diseases (IMRDs), especially at the beginning of 2020, for which information for this population is lacking.

Methods: COnVIDa is a cross-sectional study on patients with IMRD from all regions of Brazil who were invited to answer a specific and customized Web questionnaire about how they were facing the COVID-19 pandemic, especially focusing on health care access, use of medications, and patient-reported outcomes related to IMRD activity. The questionnaire was applied from June 1 to 30, 2020.

Results: In total, 1722 of 2576 patients who answered the Web questionnaire were included in the final analysis. Participants were most frequently women, 56% were between 31 and 50 years old, and most (55%) has private health insurance. The most commonly reported IMRD was rheumatoid arthritis (39%), followed by systemic lupus erythematosus (28%). During the study period, 30.7% did not have access to rheumatology consultations, and 17.6% stopped chronic medications. Telemedicine was reported in 44.8% of patients.

Conclusion: COnVIDa demonstrated a negative impact on health care access and treatment maintenance of patients living with IMRD during the COVID-19 pandemic. However, it also presented an uptake of telemedicine strategies. Data presented in this study may assist future coping policies.

巴西免疫相关风湿病患者如何面对 COVID-19 大流行的开始?COnVIDa 研究结果。
背景:2019年冠状病毒病(COVID-19)大流行给免疫介导风湿病(IMRDs)患者带来了额外负担,尤其是在2020年初,而这一人群尚缺乏相关信息:COnVIDa 是一项横断面研究,研究对象是巴西各地区的免疫介导风湿病患者,他们应邀回答了一份专门定制的网络问卷,了解他们是如何面对 COVID-19 大流行的,尤其关注医疗服务的获取、药物的使用以及患者报告的与免疫介导风湿病活动相关的结果。问卷调查时间为 2020 年 6 月 1 日至 30 日:在回答网络问卷的 2576 名患者中,共有 1722 人被纳入最终分析。参与者多为女性,56%的人年龄在 31 至 50 岁之间,大多数人(55%)拥有私人医疗保险。最常报告的 IMRD 是类风湿性关节炎(39%),其次是系统性红斑狼疮(28%)。在研究期间,30.7%的人无法获得风湿病咨询,17.6%的人停用了慢性药物。44.8%的患者接受了远程医疗:在 COVID-19 大流行期间,COnVIDa 对 IMRD 患者获得医疗服务和维持治疗产生了负面影响。然而,它也显示了对远程医疗策略的接受程度。本研究提供的数据可能有助于未来的应对政策。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Agricultural History
Agricultural History 农林科学-科学史与科学哲学
CiteScore
0.70
自引率
16.70%
发文量
58
审稿时长
>36 weeks
期刊介绍: Agricultural History is the journal of record in the field. As such, it publishes articles on all aspects of the history of agriculture and rural life with no geographical or temporal limits. The editors are particularly interested in articles that address a novel subject, demonstrate considerable primary and secondary research, display an original interpretation, and are of general interest to Society members and other Agricultural History readers.
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