Health within Illness among Persons living with Chronic Obstructive Pulmonary Disease

B. Leonard, M. Clark
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Abstract

The purpose of this descriptive qualitative study is to explore perceptions of health within illness, a health strategy used by persons with chronic obstructive pulmonary disease (COPD) to maintain their quality of life. A convenience sample of 11 community-dwelling, English-speaking adults with COPD was recruited from the Southwestern United States. The study was conducted in the homes of the participants. Naturalistic inquiry using content analysis and constant comparative techniques was used to analyze the transcribed data. Five conceptual categories emerged in the final stage of analysis that provided answers to the research questions from the perspectives of the participants. The categories were: (a) Cut Off from Life, (b) Health is Everything, (c) Making the Best of It, (d) Living with It, and (e) Breaking the Cycle. Each of the categories was inducted from emergent themes and clusters of data that represented the participants’ descriptions of living with COPD. The findings of this study highlight strategies and practices portrayed by the participants to promote their health despite suffering from a serious illness. Data from the study participants suggest the management of COPD is a complex process that requires considerable flexibility, creativity, and resilience to achieve a sense of health within illness. The study highlights important ways to improve self-care among COPD sufferers on how to manage this chronic illness beyond a trial and error process.
慢性阻塞性肺病患者疾病中的健康状况
本描述性定性研究的目的是探讨疾病中的健康观念,这是慢性阻塞性肺疾病(COPD)患者用于维持其生活质量的一种健康策略。从美国西南部招募了11名居住在社区、说英语的慢性阻塞性肺病成年人作为方便样本。这项研究是在参与者家中进行的。使用内容分析和持续比较技术的自然查询来分析转录数据。在分析的最后阶段出现了五个概念类别,从参与者的角度提供了研究问题的答案。这些类别是:(a)与生活断绝关系;(b)健康就是一切;(c)充分利用健康;(d)与健康共存;(e)打破循环。每个类别都是从代表参与者对COPD生活的描述的紧急主题和数据簇中归纳出来的。这项研究的结果强调了参与者所描绘的策略和做法,以促进他们的健康,尽管患有严重的疾病。来自研究参与者的数据表明,慢性阻塞性肺病的管理是一个复杂的过程,需要相当大的灵活性、创造力和适应力,才能在疾病中实现健康感。该研究强调了改善慢性阻塞性肺病患者自我保健的重要方法,即如何在试验和错误过程之外管理这种慢性疾病。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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