A Quality Assessment of Information Available on Renal Cancer on YouTube

J. Saad, R. Shanmugasundaram, D. Ashrafi, D. Gilbourd
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Abstract

Objectives Many people are turning to alternatives to the conventional doctor-patient relationship, such as webbased search engines and video forums for their health care information. We undertook this study to investigate the quality of videos and information on renal cancer available on the streaming platform YouTube. Methods We completed a search of YouTube (www.YouTube.com) in September 2021 with the term “kidney cancer.” The first 120 videos found which met the inclusion criteria (English speaking, duration greater than one minute, greater than 500 views, renal cancer addressed) were selected. We recorded information including duration, view count, likes, dislikes, comments, publisher, and author. The modified DISCERN tool and Global Quality Score (GQS) questionnaire were used to assess the quality of the included videos. The level of misinformation was assessed using a Likert 5-point scale. Descriptive statistics were used to analyse the collected data. A 2-sample t test was used to further analyse the quality assessment tool results before, during, and after 2016. Results Most videos were published during or after 2016 (63.3%), were predominantly created in North America (77.5%), and were presented by health care professionals (60%). The median length of the videos was 4.23 (1.01 to 65.55) minutes, and the median number of views was 3087 (514 to 228 152). The median number of likes and dislikes was 24 and 5, respectively. The median modified DISCERN score was 3, the median GQS score was 3, and the grading for overall level of misinformation was moderate. Conclusion The quality of information accessed from YouTube on kidney cancer is of a low to moderate overall standard with significant levels of misinformation. YouTube should not be used alone for educational purposes on renal cancer by patients or the public. It is best used in conjunction with information and advice from a medical practitioner and the health care system.
YouTube上关于肾癌信息的质量评估
许多人正在转向替代传统的医患关系,如基于网络的搜索引擎和视频论坛的医疗保健信息。我们进行这项研究是为了调查流媒体平台YouTube上有关肾癌的视频和信息的质量。我们于2021年9月在YouTube (www.YouTube.com)上搜索“肾癌”一词。前120个符合入选标准的视频(英语,时长超过一分钟,观看次数超过500次,涉及肾癌)被选中。我们记录的信息包括时长、观看次数、喜欢、不喜欢、评论、出版商和作者。使用改进的DISCERN工具和全球质量评分(GQS)问卷来评估所纳入视频的质量。使用李克特5分制评估错误信息的水平。采用描述性统计方法对收集到的数据进行分析。采用2样本t检验进一步分析2016年前、期间和之后的质量评估工具结果。大多数视频在2016年期间或之后发布(63.3%),主要创作于北美(77.5%),由卫生保健专业人员呈现(60%)。视频长度的中位数为4.23分钟(1.01至65.55分钟),观看次数的中位数为3087次(514至228 152次)。喜欢和不喜欢的中位数分别是24和5。修正后的DISCERN得分中位数为3分,GQS得分中位数为3分,错误信息总体水平评分为中等。结论YouTube上关于肾癌的信息质量总体为中低水平,存在明显的错误信息。YouTube不应仅用于肾癌患者或公众的教育目的。它最好与来自医生和卫生保健系统的信息和建议结合使用。
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