What is Health Data?

Q4 Medicine

Communication and Medicine Pub Date : 2022-02-17 DOI:10.1558/cam.17951

C. Rehfeld, M. Kreye, Helena Goldstein Wendelboe, T. Holm-Larsen

{"title":"What is Health Data?","authors":"C. Rehfeld, M. Kreye, Helena Goldstein Wendelboe, T. Holm-Larsen","doi":"10.1558/cam.17951","DOIUrl":null,"url":null,"abstract":"‘Health Data’ is a term that is used in many different contexts, but understandings of what it encompasses are at best vague. Without an agreed definition, effective law making, ethical discussions and the development of solutions that relate to Health Data are hindered, and decisions about how and when it can be utilized will be distorted and inconsistent, meaning that the potential value of this important resource for society will not be realized. This study contributes to the healthcare literature by offering an empirical characterization of Health Data, enabling a more rigorous and informed discussion through an exploration of its characteristics and how these can support the formulation of a definition which is functional at an interdisciplinary level.Qualitative interviews with 30 Danish stakeholders working with data and health indicate that a proper definition of Health Data should acknowledge a distinction between when the focus is on the source of the data and when it is on how data is used. Further, it needs to incorporate information relating both to clinical data involving patients and to a population’s health status and behaviors more generally. Lastly, it needs to encompass structural data, pertaining to the health system and to wider societal and environmental factors.","PeriodicalId":39728,"journal":{"name":"Communication and Medicine","volume":null,"pages":null},"PeriodicalIF":0.0000,"publicationDate":"2022-02-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Communication and Medicine","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1558/cam.17951","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q4","JCRName":"Medicine","Score":null,"Total":0}

引用次数: 0

Abstract

‘Health Data’ is a term that is used in many different contexts, but understandings of what it encompasses are at best vague. Without an agreed definition, effective law making, ethical discussions and the development of solutions that relate to Health Data are hindered, and decisions about how and when it can be utilized will be distorted and inconsistent, meaning that the potential value of this important resource for society will not be realized. This study contributes to the healthcare literature by offering an empirical characterization of Health Data, enabling a more rigorous and informed discussion through an exploration of its characteristics and how these can support the formulation of a definition which is functional at an interdisciplinary level.Qualitative interviews with 30 Danish stakeholders working with data and health indicate that a proper definition of Health Data should acknowledge a distinction between when the focus is on the source of the data and when it is on how data is used. Further, it needs to incorporate information relating both to clinical data involving patients and to a population’s health status and behaviors more generally. Lastly, it needs to encompass structural data, pertaining to the health system and to wider societal and environmental factors.

查看原文本刊更多论文

什么是健康数据?

“卫生数据”是一个在许多不同背景下使用的术语，但对其所包含内容的理解充其量是模糊的。如果没有商定的定义，就会妨碍有效的法律制定、伦理讨论和制定与卫生数据有关的解决办法，而且关于如何以及何时利用卫生数据的决定将受到扭曲和不一致，这意味着这一重要资源对社会的潜在价值将无法实现。本研究通过提供健康数据的经验特征，为医疗保健文献做出了贡献，通过探索其特征以及这些特征如何支持在跨学科水平上发挥作用的定义的制定，从而实现更严格和知情的讨论。对30名从事数据和健康工作的丹麦利益攸关方进行的定性访谈表明，健康数据的适当定义应承认重点放在数据来源和重点放在数据如何使用之间的区别。此外，它需要纳入涉及病人的临床数据以及更普遍的人口健康状况和行为方面的信息。最后，它需要包括与卫生系统和更广泛的社会和环境因素有关的结构性数据。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

求助全文

约1分钟内获得全文求助全文

来源期刊

Communication and Medicine Medicine-Public Health, Environmental and Occupational Health

CiteScore

0.30

自引率

0.00%

发文量

期刊介绍： Communication & Medicine continues to abide by the following distinctive aims: • To consolidate different traditions of discourse and communication research in its commitment to an understanding of psychosocial, cultural and ethical aspects of healthcare in contemporary societies. • To cover the different specialities within medicine and allied healthcare studies. • To underscore the significance of specific areas and themes by bringing out special issues from time to time. • To be fully committed to publishing evidence-based, data-driven original studies with practical application and relevance as key guiding principles.