Transition to Adult Care in Youth with Epilepsy: One Center's Experience with a Transition Program and Its Integration within Telemedicine

IF 0.2 Q4 PEDIATRICS

Journal of Pediatric Epilepsy Pub Date : 2020-09-23 DOI:10.1055/s-0040-1716826

G. Jones, Teresa Hickam, Courtney D Wellman, Ann C. Modrcin, A. Abdelmoity, J. Le Pichon

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Abstract

Abstract Neurology patients often have disorders that require life-long care and ongoing treatment. The transition of pediatric neurology patients to adult neurology care, particularly in epilepsy, is an evolving concept that is recognized as important for patients and families. Children's Mercy Hospital, Kansas City has an established transition program that has been integrated into the neurology clinic as a part of standard care. Our experience and utilization of a transition program has provided our patients with a unique opportunity, empowering them to navigate their own care and create a seamless transition to adult neurology. Through a collaboration with the American Academy of Pediatrics and the Department of Health Resources and Services Administration, we have proposed a practice model designed to create a medical home for children and youth with epilepsy in rural underserved areas of Kansas. One of the core end points of this study is transition of care for youth with epilepsy using telemedicine. In this article, we describe our experience with a transition program for epilepsy patients and describe the very early implementation of this program to a telemedicine transition program designed for underserved rural populations.

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过渡到成人护理的青少年癫痫:一个中心的经验与过渡方案及其集成在远程医疗

神经系统疾病患者往往需要终身护理和持续治疗。儿童神经病学患者向成人神经病学护理的过渡，特别是癫痫，是一个不断发展的概念，被认为对患者和家庭很重要。儿童慈善医院，堪萨斯城有一个已建立的过渡方案，已纳入神经病学诊所作为标准护理的一部分。我们对过渡项目的经验和利用为我们的患者提供了一个独特的机会，使他们能够驾驭自己的护理，并创造一个无缝过渡到成人神经病学。通过与美国儿科学会和卫生资源与服务管理局的合作，我们提出了一种实践模式，旨在为堪萨斯州服务不足的农村地区的癫痫儿童和青少年建立一个医疗之家。本研究的核心终点之一是使用远程医疗对青少年癫痫患者的护理过渡。在这篇文章中，我们描述了我们在癫痫患者过渡计划方面的经验，并描述了该计划的早期实施，以及为服务不足的农村人口设计的远程医疗过渡计划。

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来源期刊

Journal of Pediatric Epilepsy PEDIATRICS-

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期刊介绍： The Journal of Pediatric Epilepsy is an English multidisciplinary peer-reviewed international journal publishing articles on all topics related to epilepsy and seizure disorders, epilepsy surgery, neurology, neurosurgery, and neuropsychology in childhood. These topics include the basic sciences related to the condition itself, the differential diagnosis, natural history, and epidemiology of seizures, and the investigation and practical management of epilepsy (including drug treatment, neurosurgery and non-medical and behavioral treatments). Use of model organisms and in vitro techniques relevant to epilepsy are also acceptable. Journal of Pediatric Epilepsy provides an in-depth update on new subjects and current comprehensive coverage of the latest techniques used in the diagnosis and treatment of childhood epilepsy.